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UNLABELLED BACKGROUND Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment and health-related quality of life (HRQoL) among adolescents and young adults with parents suffering from palliative cancer or cancers in other disease stages, b) to relate psychosocial adjustment and health-related quality of life to adolescent coping, and c) to explore significant mediator and predictor variables. METHODS Cross-sectional data were derived from a multi-site research study of families before child-centered counselling. N=86 adolescents and young adults were included, their mean age 13.78 years (sd 2.45), 56% being female. Performed analyses included ANCOVA, multiple linear regression, and mediation analysis. RESULTS Adolescents with parents suffering from palliative cancers reported significantly less total psychosocial problems, and better overall HRQoL. There were no significant group differences regarding coping frequency and efficacy. Our set of coping items significantly mediated the effect of parental disease stage on psychosocial problems and HRQoL. Further, parental disease status and general family functioning predicted psychosocial problems (R2adj =.390) and HRQoL (R2adj =.239) best. CONCLUSION The study indicates distress among adolescents throughout the entire parental disease process. Our analysis suggests that counselling services could offer supportive interventions which focus particularly on adolescent coping as well as family functioning.
There is still so much ahead of us - Family functioning in families of palliative cancer patients
(2013)
Adopting a systems approach, parental cancer has its impact on patients, spouses, and dependent children. The purpose of the current study was to examine family functioning dependent on parental disease stage and on family member perspective in families of cancer patients with adolescent children. The cross-sectional study was conducted within a German multisite research project of families before their first child-centered counseling encounter. The sample comprised individuals nested within N = 169 families. Analyses performed included analysis of covariance (ANCOVA) and intraclass correlation. Open answers were analyzed following quantitative content analysis procedures. Between 15% and 36% of family members reported dysfunctional general functioning scores. Parents indicated more dysfunctional scores on the Family Assessment Device scale Roles, and adolescents more dysfunctional Communication scores. Regarding assessment of family functioning, there was higher agreement in families with parents in a palliative situation. For adolescents with parents in palliation, incidents because of the disease tend to become more dominant, and spending time with the family tends to become even more important. As our study pointed out, parental cancer, and especially parental palliative disease, is associated with both perceived critical and positive aspects in family functioning. Supporting families in these concerns as well as encouraging perceptions of positive aspects are important components of psycho-oncological interventions for families with dependent children.
Minor Children of Palliative Patients: A Systematic Review of Psychosocial Family Interventions
(2012)
Persistent feelings of gender dysphoria (GD) are accompanied by distress and body dissatisfaction in most clinically referred adolescents and adults. Transition-related medical interventions (e.g., puberty suppression, hormones, or surgery) may alleviate body dissatisfaction. The aim of the present cross-sectional study was to compare multidimensional body image across clinically referred adolescents and adults undergoing different transition-related medical interventions. Two clinical samples of adolescents (n = 82) and adults (n = 120) referred to specialized departments of four different transgender health services in Germany participated in the study. In total, 202 individuals from the female-to-male (FtM individuals) and male-to-female (MtF individuals) spectrum aged 14-74 years were included at different stages of their transition. Four scales assessing multidimensional aspects of body image (measured by the Body Image Assessment Questionnaire, FBeK) were compared across three groups: sample, gender, and medical interventions (while controlling for age and treatment duration). The results indicated less favorable body image scores compared with the norm in both adolescents and adults with GD. Individuals who had undergone transition-related medical interventions presented a significantly better body image on two of the four scales. Differences according to gender and age were also present. These findings suggest that medical interventions, especially gender-affirming hormones and surgery, are generally beneficial to the body image in individuals with GD. However, not all of the less favorable outcomes in multidimensional body image were positively influenced by the treatment conditions and may thus benefit from additional integrative counseling before and during transition.
Evaluation competencies in the context of diversity training: The practitioners’ point of view
(2018)
People adapt their word choice to both humans and computers. In this study, language style (elaborated vs. restricted) and perceived conversational partner (human vs. spoken dialogue system) were varied. Convergence was greater when reacting to a restricted language style. Participants preferred human partners and an elaborated language style. In line with communication accommodation theory, results suggest that considering restricted capabilities (cognitive organization) constitutes a central motive for convergence. Implications for spoken dialogue system design are discussed.
One of many ways in which spoken dialogue systems (SDS) are becoming more and more flexible is in their choice of words (e.g. alignment to the user’s vocabulary). We examined how users perceive such adaptive and non-adaptive SDS regarding trustworthiness and usability. In Experiment 1, 130 participants read out questions to an SDS that either made or did not make lexical alignment in its replies. They perceived higher cognitive demand when the SDS did not employ alignment. In Experiment 2, 135 participants listened to a conversation between a human and the same SDS in an online study. They judged the aligned SDS to have more integrity and to be more likeable. Implications for the design of SDS are discussed.
Communicating with spoken dialogue systems (SDS) such as Apple’s Siri® and Google’s Now is becoming more and more common. We report a study that manipulates an SDS’s word use with regard to politeness. In an experiment, 58 young adults evaluated the spoken messages of our self-developed SDS as it replied to typical questions posed by university freshmen. The answers were either formulated politely or rudely. Dependent measures were both holistic measures of how students perceived the SDS as well as detailed evaluations of each single answer. Results show that participants not only evaluated the content of rude answers as being less appropriate and less pleasant than the polite answers, but also evaluated the rude system as less accurate. Lack of politeness also impacted aspects of the perceived trustworthiness of the SDS. We conclude that users of SDS expect such systems to be polite, and we then discuss some practical implications for designing SDS.
Bad Roots to Grow: Deficient Implicit Self-Evaluations in Chronic Depression With an Early Onset
(2016)