TY - JOUR A1 - Amaefule, Chimezie O. A1 - Goerss, Doreen A1 - Halek, Margareta A1 - Kernebeck, Sven A1 - Kirste, Thomas A1 - Teipel, Stefan J. T1 - PREDICTING DAYTIME MANIFESTATIONS OF CHALLENGING BEHAVIOURS IN ADVANCED STAGES OF DEMENTIA USING PRE-DAYTIME ACCELEROMETRY: POST-HOC ANALYSIS OF THE DZNE ROSTOCK INSIDEDEM STUDY JF - Alzheimer's & Dementia Y1 - 2019 U6 - http://dx.doi.org/10.1016/j.jalz.2019.06.4063 SN - 1552-5260 VL - 15 SP - P1451 EP - P1452 ER - TY - JOUR A1 - Amaefule, Chimezie O. A1 - Goerss, Doreen A1 - Halek, Margareta A1 - Kernebeck, Sven A1 - Kirste, Thomas A1 - Teipel, Stefan J. T1 - PREDICTING DAYTIME MANIFESTATIONS OF CHALLENGING BEHAVIOURS IN ADVANCED STAGES OF DEMENTIA USING PRE-DAYTIME ACCELEROMETRY: POST-HOC ANALYSIS OF THE DZNE ROSTOCK INSIDEDEM STUDY JF - Alzheimer's & Dementia Y1 - 2019 U6 - http://dx.doi.org/10.1016/j.jalz.2019.06.4340 SN - 1552-5260 VL - 15 SP - P165 EP - P166 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Kernebeck, Sven A1 - Dreier, Larissa Alice A1 - Meyer, Dorothee A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care: A Think-Aloud Study JF - Children N2 - Background: Pediatric palliative care (PPC) patients experience years of multisectoral and professional care. An electronic cross-facility health record (ECHR) system can support the immediate exchange of information among PPC professionals. Based on a needs assessment, a prototype ECHR system was developed. Methods: To evaluate potential users’ perspective regarding the system, a qualitative observational study was conducted consisting of a concurrent think-aloud session and a semi-structured qualitative interview. Results: Twenty PPC professionals (nurses, physicians) from specialized outpatient PPC teams, a PPC unit, and medical offices rated the ECHR system as a helpful tool to improve the exchange and collection of information, communication between PPC professionals, and treatment planning. From the user’s point of view, the basic logic of the ECHR system should be further adapted to improve the interaction of data remirrored from patient records of outpatient and inpatient care with those entered via the system. The users wished for further functions (text search) and content (information on therapies). Some content, such as the treatment process, needs to be further adapted. Conclusion: The developed ECHR system needs to be more specific in some features by offering all available information; while for other features, be less specific to offer a quick overview. The ability to share information promptly and automatically was seen as a tremendous improvement to the quality of care for PPC patients. Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173191 SN - 2227-9067 VL - 8 SP - 839 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Kernebeck, Sven A1 - Dreier, Larissa Alice A1 - Meyer, Dorothee A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach JF - Children N2 - Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. Methods: Guided by design thinking, first, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Based on the needs stated in the interviews, prototypes of the ECHR were developed and discussed in the FGs. The indicated needs were supplemented and specified in an iterative process. The prototypes were further adapted according to these results. The unified theory of acceptance and use of technology was the basic model in the evaluation of needs. Results: Across seven main categories, past and current medication, emergency view, and messaging functions were identified as the participants’ desired core components of an ECHR. Utilizing design thinking facilitated the explicit articulation of user needs. Conclusions: Developing an ECHR with the content identified would allow for real-time data during emergencies, tracking what other PPC professionals have done, and making the applied treatments visible to others. This would offer a broader picture of the complex conditions common to PPC. Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173245 SN - 2227-9067 VL - 8 SP - 602 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Kernebeck, Sven A1 - Meister, Sven A1 - Ehlers, Jan P. T1 - Steigerung der Versorgungsqualität in der Palliativversorgung durch elektronische Gesundheitsakten JF - Monitor Versorgungsforschung Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173035 SN - 1866-0533 VL - 14 SP - 45 EP - 50 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Laser, Johannes A1 - Rasche, Peter A1 - Vollmar, Horst Christian A1 - Ehlers, Jan P A1 - Kernebeck, Sven T1 - Involving Health Care Professionals in the Development of Electronic Health Records: Scoping Review JF - JMIR Human Factors N2 - Electronic health records (EHRs) are a promising approach to document and map (complex) health information gathered in health care worldwide. However, possible unintended consequences during use, which can occur owing to low usability or the lack of adaption to existing workflows (eg, high cognitive load), may pose a challenge. To prevent this, the involvement of users in the development of EHRs is crucial and growing. Overall, involvement is designed to be very multifaceted, for example, in terms of the timing, frequency, or even methods used to capture user preferences. Setting, users and their needs, and the context and practice of health care must be considered in the design and subsequent implementation of EHRs. Many different approaches to user involvement exist, each requiring a variety of methodological choices. The aim of the study was to provide an overview of the existing forms of user involvement and the circumstances they need and to provide support for the planning of new involvement processes. We conducted a scoping review to provide a database for future projects on which design of inclusion is worthwhile and to show the diversity of reporting. Using a very broad search string, we searched the PubMed, CINAHL, and Scopus databases. In addition, we searched Google Scholar. Hits were screened according to scoping review methodology and then examined, focusing on methods and materials, participants, frequency and design of the development, and competencies of the researchers involved. In total, 70 articles were included in the final analysis. There was a wide range of methods of involvement. Physicians and nurses were the most frequently included groups and, in most cases, were involved only once in the process. The approach of involvement (eg, co-design) was not specified in most of the studies (44/70, 63%). Further qualitative deficiencies in the reporting were evident in the presentation of the competences of members of the research and development teams. Think-aloud sessions, interviews, and prototypes were frequently used. This review provides insights into the diversity of health care professionals’ involvement in the development of EHRs. It provides an overview of the different approaches in various fields of health care. However, it also shows the necessity of considering quality standards in the development of EHRs together with future users and the need for reporting this in future studies. Y1 - 2023 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173050 VL - 10 SP - e45598 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Dreier, Larissa Alicia A1 - Meyer, Dorothee A1 - Goletz, Grazyna A1 - Zenz, Daniel A1 - Wager, Julia A1 - Ehlers, Jan Peter A1 - Zernikow, Boris T1 - Nutzer*innenzentrierte Entwicklung einer elektronischen Patient*innenakte für die pädiatrische Palliativversorgung – Ergebnisse von Fokusgruppeninterviews mit Pflegenden im stationären Setting. JF - Zeitschrift für Palliativmedizin Y1 - 2020 U6 - http://dx.doi.org/10.1055/s-0040-1714990 VL - 21 IS - 5 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Dreier, Larissa Alicia A1 - Meyer, Dorothee A1 - Goletz, Grazyna A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Wager, Julia T1 - Nutzer*innenzentrierte Entwicklung einer digitalen Patient*innenakte in der pädiatrischen Palliativversorgung. Y1 - 2020 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Dreier, Larissa A1 - Meyer, Dorothee A1 - Goletz, Graznya A1 - Zenz, D. A1 - Wager, Julia A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Nutzung von Mock-ups im Co-Design-Prozess der partizipativen Entwicklung einer stationären elektronischen Patient*innenakte für die pädiatrische Palliativversorgung - ein Erfahrungsbericht JF - 19. Deutscher Kongress für Versorgungsforschung, Deutsches Netzwerk für Versorgungsforschung e.V, September 2020, online Y1 - 2020 U6 - http://dx.doi.org/10.3205/20dkvf117 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Nef, Larissa A1 - Rebacz, Patrick A1 - Kickbusch, Ilona A1 - Ehlers, Jan Peter T1 - Views on Using Social Robots in Professional Caregiving: Content Analysis of a Scenario Method Workshop (Preprint) JF - J Med Internet Res N2 - BACKGROUND Interest in digital technologies in the health care sector is growing and can be a way to reduce the burden on professional caregivers while helping people to become more independent. Social robots are regarded as a special form of technology that can be usefully applied in professional caregiving with the potential to focus on interpersonal contact. While implementation is progressing slowly, a debate on the concepts and applications of social robots in future care is necessary. OBJECTIVE In addition to existing studies with a focus on societal attitudes toward social robots, there is a need to understand the views of professional caregivers and patients. This study used desired future scenarios to collate the perspectives of experts and analyze the significance for developing the place of social robots in care. METHODS In February 2020, an expert workshop was held with 88 participants (health professionals and educators; [PhD] students of medicine, health care, professional care, and technology; patient advocates; software developers; government representatives; and research fellows) from Austria, Germany, and Switzerland. Using the scenario methodology, the possibilities of analog professional care (Analog Care), fully robotic professional care (Robotic Care), teams of robots and professional caregivers (Deep Care), and professional caregivers supported by robots (Smart Care) were discussed. The scenarios were used as a stimulus for the development of ideas about future professional caregiving. The discussion was evaluated using qualitative content analysis. RESULTS The majority of the experts were in favor of care in which people are supported by technology (Deep Care) and developed similar scenarios with a focus on dignity-centeredness. The discussions then focused on the steps necessary for its implementation, highlighting a strong need for the development of eHealth competence in society, a change in the training of professional caregivers, and cross-sectoral concepts. The experts also saw user acceptance as crucial to the use of robotics. This involves the acceptance of both professional caregivers and care recipients. CONCLUSIONS The literature review and subsequent workshop revealed how decision-making about the value of social robots depends on personal characteristics related to experience and values. There is therefore a strong need to recognize individual perspectives of care before social robots become an integrated part of care in the future. Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173072 VL - 23 IS - 11 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Nitsche, Julia A1 - Kernebeck, Sven A1 - Jux, Chantal A1 - Weitz, Jürgen A1 - Ehlers, Jan P. A1 - Bork, Ulrich T1 - Approaches to Improvement of Digital Health Literacy (eHL) in the Context of Person-Centered Care JF - International Journal of Environmental Research and Public Health N2 - The skills, knowledge and resources to search for, find, understand, evaluate and apply health information is defined as health literacy (HL). If individuals want to use health information from the Internet, they need Digital Health Literacy (eHL), which in addition to HL also includes, for example, media literacy. If information cannot be found or understood by patients due to low (e)HL, patients will not have the opportunity to make informed decisions. In addition, many health apps for self-management or prevention also require (e)HL. Thus, it follows that active participation in healthcare, in terms of Person-Centered Care (PCC) is only possible through (e)HL. Currently, there is a great need to strengthen these competencies in society to achieve increased empowerment of patients and their health. However, at the same time, there is a need to train and improve competencies in the field of healthcare professionals so that they can counsel and guide patients. This article provides an overview with a focus on HL and eHL in healthcare, shows the opportunities to adapt services and describes the possible handling of patients with low (e)HL. In addition, the opportunities for patients and healthcare professionals to improve (e)HL are highlighted. Y1 - 2022 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173115 SN - 1661-7827 VL - 19 SP - 8309 ER - TY - JOUR A1 - Goerss, Doreen A1 - Hein, Albert A1 - Bader, Sebastian A1 - Halek, Margareta A1 - Kernebeck, Sven A1 - Kutschke, Andreas A1 - Heine, Christina A1 - Krueger, Frank A1 - Kirste, Thomas A1 - Teipel, Stefan T1 - Automated sensor‐based detection of challenging behaviors in advanced stages of dementia in nursing homes JF - Alzheimer's & Dementia N2 - Sensor‐based assessment of challenging behaviors in dementia may be useful to support caregivers. Here, we investigated accelerometry as tool for identification and prediction of challenging behaviors. We set up a complex data recording study in two nursing homes with 17 persons in advanced stages of dementia. Study included four‐week observation of behaviors. In parallel, subjects wore sensors 24 h/7 d. Participants underwent neuropsychological assessment including MiniMental State Examination and Cohen‐Mansfield Agitation Inventory. We calculated the accelerometric motion score (AMS) from accelerometers. The AMS was associated with several types of agitated behaviors and could predict subject's Cohen‐Mansfield Agitation Inventory values. Beyond the mechanistic association between AMS and behavior on the group level, the AMS provided an added value for prediction of behaviors on an individual level. We confirm that accelerometry can provide relevant information about challenging behaviors. We extended previous studies by differentiating various types of agitated behaviors and applying long‐term measurements in a real‐world setting. Y1 - 2020 U6 - http://dx.doi.org/10.1016/j.jalz.2019.08.193 SN - 1552-5260 VL - 16 SP - 672 EP - 680 ER - TY - JOUR A1 - Goerss, Doreen A1 - Hein, Albert A1 - Bader, Sebastian A1 - Halek, Margareta A1 - Kernebeck, Sven A1 - Kutschke, Andreas A1 - Kirste, Thomas A1 - Teipel, Stefan J. T1 - P1‐284: AUTOMATED SENSOR‐BASED DETECTION OF CHALLENGING BEHAVIORS IN ADVANCED STAGES OF DEMENTIA IN NURSING HOMES JF - Alzheimer's & Dementia Y1 - 2019 U6 - http://dx.doi.org/10.1016/j.jalz.2019.06.839 SN - 1552-5260 VL - 15 IS - 7S_Part_7 SP - P351 ER - TY - JOUR A1 - Goerss, Doreen A1 - Hein, Albert A1 - Bader, Sebastian A1 - Halek, Margareta A1 - Kernebeck, Sven A1 - Kutschke, Andreas A1 - Kirste, Thomas A1 - Teipel, Stefan J. T1 - AUTOMATED SENSOR-BASED DETECTION OF CHALLENGING BEHAVIORS IN ADVANCED STAGES OF DEMENTIA IN NURSING HOMES JF - Alzheimer's & Dementia Y1 - 2019 U6 - http://dx.doi.org/10.1016/j.jalz.2019.06.4309 SN - 1552-5260 VL - 15 SP - P151 EP - P152 ER - TY - JOUR A1 - Jahnel, Tina A1 - Kernebeck, Sven A1 - Böbel, Simone A1 - Buchner, Benedikt A1 - Grill, Eva A1 - Hinck, Sebastian A1 - Ranisch, Robert A1 - Rothenbacher, Dietrich A1 - Schüz, Benjamin A1 - Starke, Dagmar A1 - Wienert, Julian A1 - Zeeb, Hajo A1 - Gerhardus, Ansgar T1 - Contact-Tracing-Apps als unterstützende Maßnahme bei der Kontaktpersonennachverfolgung von COVID-19 JF - Das Gesundheitswesen N2 - Die Kontaktpersonennachverfolgung ist derzeit eine der wirksamsten Maßnahmen zur Eindämmung der COVID-19 Pandemie. Digitales Contact Tracing mittels Smartphones scheint eine sinnvolle zusätzliche Maßnahme zur manuellen Kontaktpersonennachverfolgung zu sein, um Personen zu identifizieren, die nicht bekannt oder nicht erinnerlich sind und um den zeitlichen Verzug beim Melden eines Infektionsfalles und beim Benachrichtigen von Kontaktpersonen so gering wie möglich zu halten. Obwohl erste Modellierungsstudien eine positive Wirkung in Bezug auf eine zeitnahe Kontaktpersonennachverfolgung nahelegen, gibt es bislang keine empirisch belastbaren Daten, weder zum bevölkerungsweiten Nutzen noch zum potenziellen Schaden von Contact-Tracing-Apps. Die Beurteilung der Zweckerfüllung und eine wissenschaftliche interdisziplinäre Begleitforschung sowohl zur Wirksamkeit, Risiken und Nebenwirkungen als auch zu Implementierungsprozessen (z. B. Planung und Einbezug verschiedener Beteiligter) sind wesentliche Bestandteile einer Nutzen-Risiko Bewertung. Dieser Beitrag betrachtet daher den möglichen Public-Health-Nutzen sowie technische, soziale, rechtliche und ethische Aspekte einer Contact-Tracing-App zur Kontaktpersonennachverfolgung im Rahmen der COVID-19-Pandemie. Weiterhin werden Bedingungen für eine möglichst breite Nutzung der App aufgezeigt. Y1 - 2020 U6 - http://dx.doi.org/10.1055/a-1195-2474 SN - 0941-3790 VL - 82 SP - 664 EP - 669 ER - TY - JOUR A1 - Kernebeck, Sven T1 - Das eHealth Gesetz – What it is, What it isn't and what it supposed to be JF - Pflegezeitschrift Y1 - 2015 ER - TY - JOUR A1 - Kernebeck, Sven T1 - Schmerz und Schmerzmanagement JF - NOVAcura Y1 - 2019 SP - 1 EP - 5 ER - TY - JOUR A1 - Kernebeck, Sven T1 - Partizipative Entwicklung von digitalen Technologien - Mit Nutzerinnen und Nutzern gemeinsam digitale Technologien entwickeln JF - NOVAcura Y1 - 2020 UR - https://doi.org/10.1024/1662-9027/a000101 SN - 1662-9027 VL - 51 IS - 6 ER - TY - JOUR A1 - Kernebeck, Sven A1 - Busse, Theresa S A1 - Böttcher, Maximilian D A1 - Weitz, Jürgen A1 - Ehlers, Jan A1 - Bork, Ulrich T1 - Impact of mobile health and medical applications on clinical practice in gastroenterology JF - World Journal of Gastroenterology N2 - Mobile health apps (MHAs) and medical apps (MAs) are becoming increasingly popular as digital interventions in a wide range of health-related applications in almost all sectors of healthcare. The surge in demand for digital medical solutions has been accelerated by the need for new diagnostic and therapeutic methods in the current coronavirus disease 2019 pandemic. This also applies to clinical practice in gastroenterology, which has, in many respects, undergone a recent digital transformation with numerous consequences that will impact patients and health care professionals in the near future. MHAs and MAs are considered to have great potential, especially for chronic diseases, as they can support the self-management of patients in many ways. Despite the great potential associated with the application of MHAs and MAs in gastroenterology and health care in general, there are numerous challenges to be met in the future, including both the ethical and legal aspects of applying this technology. The aim of this article is to provide an overview of the current status of MHA and MA use in the field of gastroenterology, describe the future perspectives in this field and point out some of the challenges that need to be addressed. Y1 - 2020 U6 - http://dx.doi.org/10.3748/wjg.v26.i29.4182 SN - 1007-9327 VL - 26 SP - 4182 EP - 4197 ER - TY - JOUR A1 - Kernebeck, Sven A1 - Busse, Theresa Sophie A1 - Ehlers, Jan Peter A1 - Vollmar, Horst Christian T1 - Adhärenz digitaler Interventionen im Gesundheitswesen: Definitionen, Methoden und offene Fragen JF - Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz N2 - AbstractMany digital interventions rely on the participation of their users to have a positive impact. In various areas it can be observed that the use of digital interventions is often reduced or fully discontinued by the users after a short period of time. This is seen as one of the main factors that can limit the effectiveness of digital interventions. In this context, the concept of adherence to digital interventions is becoming increasingly important. Adherence to digital interventions is roughly defined as “the degree to which the user followed the program as it was designed,” which can also be paraphrased as “intended use” or “use as it is designed.” However, both the theoretical–conceptual and practical discussions regarding adherence to digital interventions still receive too little attention.The aim of this narrative review article is to shed more light on the concept of adherence to digital interventions and to distinguish it from related concepts. It also discusses the methods and metrics that can be used to operationalize adherence and the predictors that positively influence adherence. Finally, needs for action to better address adherence are considered critically. Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173188 SN - 1436-9990 VL - 64 SP - 1278 EP - 1284 ER -