TY - JOUR A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Kernebeck, Sven A1 - Dreier, Larissa Alice A1 - Meyer, Dorothee A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care: A Think-Aloud Study JF - Children N2 - Background: Pediatric palliative care (PPC) patients experience years of multisectoral and professional care. An electronic cross-facility health record (ECHR) system can support the immediate exchange of information among PPC professionals. Based on a needs assessment, a prototype ECHR system was developed. Methods: To evaluate potential users’ perspective regarding the system, a qualitative observational study was conducted consisting of a concurrent think-aloud session and a semi-structured qualitative interview. Results: Twenty PPC professionals (nurses, physicians) from specialized outpatient PPC teams, a PPC unit, and medical offices rated the ECHR system as a helpful tool to improve the exchange and collection of information, communication between PPC professionals, and treatment planning. From the user’s point of view, the basic logic of the ECHR system should be further adapted to improve the interaction of data remirrored from patient records of outpatient and inpatient care with those entered via the system. The users wished for further functions (text search) and content (information on therapies). Some content, such as the treatment process, needs to be further adapted. Conclusion: The developed ECHR system needs to be more specific in some features by offering all available information; while for other features, be less specific to offer a quick overview. The ability to share information promptly and automatically was seen as a tremendous improvement to the quality of care for PPC patients. Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173191 SN - 2227-9067 VL - 8 SP - 839 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Kernebeck, Sven A1 - Dreier, Larissa Alice A1 - Meyer, Dorothee A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach JF - Children N2 - Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. Methods: Guided by design thinking, first, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Based on the needs stated in the interviews, prototypes of the ECHR were developed and discussed in the FGs. The indicated needs were supplemented and specified in an iterative process. The prototypes were further adapted according to these results. The unified theory of acceptance and use of technology was the basic model in the evaluation of needs. Results: Across seven main categories, past and current medication, emergency view, and messaging functions were identified as the participants’ desired core components of an ECHR. Utilizing design thinking facilitated the explicit articulation of user needs. Conclusions: Developing an ECHR with the content identified would allow for real-time data during emergencies, tracking what other PPC professionals have done, and making the applied treatments visible to others. This would offer a broader picture of the complex conditions common to PPC. Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173245 SN - 2227-9067 VL - 8 SP - 602 ER - TY - CHAP A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Kernebeck, Sven A1 - Meyer, Dorothee A1 - Dreier, Larissa A1 - Zenz, Daniel A1 - Wager, Julia A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - "Manchmal gehen die Faxgeräte gerade nicht so wie sie sollen. Dann kommt irgendwie nichts an und dann ruft man das fünfte Mal an." - Nutzung von Design Thinking zur partizipativen Entwicklung einer elektronischen Fallakte in der pädiatrischen Palliativversorgung T2 - 20. Deutscher Kongress für Versorgungsforschung, 06. - 08.10.2021, digital Y1 - 2021 U6 - http://dx.doi.org/10.3205/21dkvf220 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Dreier, Larissa Alicia A1 - Meyer, Dorothee A1 - Goletz, Grazyna A1 - Zenz, Daniel A1 - Wager, Julia A1 - Ehlers, Jan Peter A1 - Zernikow, Boris T1 - Nutzer*innenzentrierte Entwicklung einer elektronischen Patient*innenakte für die pädiatrische Palliativversorgung – Ergebnisse von Fokusgruppeninterviews mit Pflegenden im stationären Setting. JF - Zeitschrift für Palliativmedizin Y1 - 2020 U6 - http://dx.doi.org/10.1055/s-0040-1714990 VL - 21 IS - 5 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Dreier, Larissa A1 - Meyer, Dorothee A1 - Goletz, Graznya A1 - Zenz, D. A1 - Wager, Julia A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Nutzung von Mock-ups im Co-Design-Prozess der partizipativen Entwicklung einer stationären elektronischen Patient*innenakte für die pädiatrische Palliativversorgung - ein Erfahrungsbericht JF - 19. Deutscher Kongress für Versorgungsforschung, Deutsches Netzwerk für Versorgungsforschung e.V, September 2020, online Y1 - 2020 U6 - http://dx.doi.org/10.3205/20dkvf117 ER - TY - CHAP A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Ehlers, Jan Peter T1 - Projektbericht – partizipative Entwicklung eines elektronischen Aktensystems– Erfahrungen und Übertragung auf ePA und ePA-nahe Anwendungen. T2 - eHealth Monitor 2022 Y1 - 2023 SN - 978-3-95466-759-8 ER - TY - CHAP A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Jux, Chantal A1 - Laser, Johannes A1 - Ehlers, Jan Peter T1 - Einbezug von Versorger:innen in die Entwicklung und Evaluation elektronischer Gesundheitsakten - ein Scoping Review T2 - 21. Deutscher Kongress für Versorgungsforschung, Deutsches Netzwerk Versorgungsforschung e. V., 05.10. - 07.10.2022, Potsdam Y1 - 2022 U6 - http://dx.doi.org/10.3205/22dkvf342 ER - TY - CHAP A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Meyer, Dorothee A1 - Dreier, Larissa A1 - Goletz, Grazyna A1 - Zenz, Daniel A1 - Ehlers, Jan Peter A1 - Wager, Julia A1 - Zernikow, Boris T1 - Verbesserung der Gesundheitsversorgung in der pädiatrischen Palliativversorgung durch Digitalisierung im partizipativen Entwicklungs- und Forschungsprojekt ELSA-PP zur Entwicklung eines elektronischen sektorenübergreifenden Aktensystems T2 - 19. Deutscher Kongress für Versorgungsforschung, 30.09. - 01.10.2020, digital Y1 - 2020 U6 - http://dx.doi.org/10.3205/20dkvf435 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Nef, Larissa A1 - Rebacz, Patrick A1 - Kickbusch, Ilona A1 - Ehlers, Jan Peter T1 - Views on Using Social Robots in Professional Caregiving: Content Analysis of a Scenario Method Workshop (Preprint) JF - J Med Internet Res N2 - BACKGROUND Interest in digital technologies in the health care sector is growing and can be a way to reduce the burden on professional caregivers while helping people to become more independent. Social robots are regarded as a special form of technology that can be usefully applied in professional caregiving with the potential to focus on interpersonal contact. While implementation is progressing slowly, a debate on the concepts and applications of social robots in future care is necessary. OBJECTIVE In addition to existing studies with a focus on societal attitudes toward social robots, there is a need to understand the views of professional caregivers and patients. This study used desired future scenarios to collate the perspectives of experts and analyze the significance for developing the place of social robots in care. METHODS In February 2020, an expert workshop was held with 88 participants (health professionals and educators; [PhD] students of medicine, health care, professional care, and technology; patient advocates; software developers; government representatives; and research fellows) from Austria, Germany, and Switzerland. Using the scenario methodology, the possibilities of analog professional care (Analog Care), fully robotic professional care (Robotic Care), teams of robots and professional caregivers (Deep Care), and professional caregivers supported by robots (Smart Care) were discussed. The scenarios were used as a stimulus for the development of ideas about future professional caregiving. The discussion was evaluated using qualitative content analysis. RESULTS The majority of the experts were in favor of care in which people are supported by technology (Deep Care) and developed similar scenarios with a focus on dignity-centeredness. The discussions then focused on the steps necessary for its implementation, highlighting a strong need for the development of eHealth competence in society, a change in the training of professional caregivers, and cross-sectoral concepts. The experts also saw user acceptance as crucial to the use of robotics. This involves the acceptance of both professional caregivers and care recipients. CONCLUSIONS The literature review and subsequent workshop revealed how decision-making about the value of social robots depends on personal characteristics related to experience and values. There is therefore a strong need to recognize individual perspectives of care before social robots become an integrated part of care in the future. Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173072 VL - 23 IS - 11 ER - TY - CHAP A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Rasche, Peter A1 - Ehlers, Jan Peter T1 - Einsatz von Mock-Ups und Prototypen im Rahmen partizipativer Technologieentwicklung T2 - Partizipative Technikentwicklung im Sozial- und Gesundheitswesen Interdisziplinäre Konzepte und Methoden. Hrsg. Sven Kernebeck, Florian Fischer Y1 - 2024 SN - 978-3-456-86266-8 SP - 215 EP - 223 PB - Hogrefe CY - Göttingen ER -