TY - JOUR A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Kernebeck, Sven A1 - Dreier, Larissa Alice A1 - Meyer, Dorothee A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care: A Think-Aloud Study JF - Children N2 - Background: Pediatric palliative care (PPC) patients experience years of multisectoral and professional care. An electronic cross-facility health record (ECHR) system can support the immediate exchange of information among PPC professionals. Based on a needs assessment, a prototype ECHR system was developed. Methods: To evaluate potential users’ perspective regarding the system, a qualitative observational study was conducted consisting of a concurrent think-aloud session and a semi-structured qualitative interview. Results: Twenty PPC professionals (nurses, physicians) from specialized outpatient PPC teams, a PPC unit, and medical offices rated the ECHR system as a helpful tool to improve the exchange and collection of information, communication between PPC professionals, and treatment planning. From the user’s point of view, the basic logic of the ECHR system should be further adapted to improve the interaction of data remirrored from patient records of outpatient and inpatient care with those entered via the system. The users wished for further functions (text search) and content (information on therapies). Some content, such as the treatment process, needs to be further adapted. Conclusion: The developed ECHR system needs to be more specific in some features by offering all available information; while for other features, be less specific to offer a quick overview. The ability to share information promptly and automatically was seen as a tremendous improvement to the quality of care for PPC patients. Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173191 SN - 2227-9067 VL - 8 SP - 839 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Kernebeck, Sven A1 - Dreier, Larissa Alice A1 - Meyer, Dorothee A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach JF - Children N2 - Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. Methods: Guided by design thinking, first, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Based on the needs stated in the interviews, prototypes of the ECHR were developed and discussed in the FGs. The indicated needs were supplemented and specified in an iterative process. The prototypes were further adapted according to these results. The unified theory of acceptance and use of technology was the basic model in the evaluation of needs. Results: Across seven main categories, past and current medication, emergency view, and messaging functions were identified as the participants’ desired core components of an ECHR. Utilizing design thinking facilitated the explicit articulation of user needs. Conclusions: Developing an ECHR with the content identified would allow for real-time data during emergencies, tracking what other PPC professionals have done, and making the applied treatments visible to others. This would offer a broader picture of the complex conditions common to PPC. Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173245 SN - 2227-9067 VL - 8 SP - 602 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Kernebeck, Sven A1 - Meister, Sven A1 - Ehlers, Jan P. T1 - Steigerung der Versorgungsqualität in der Palliativversorgung durch elektronische Gesundheitsakten JF - Monitor Versorgungsforschung Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173035 SN - 1866-0533 VL - 14 SP - 45 EP - 50 ER - TY - CHAP A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Kernebeck, Sven A1 - Meyer, Dorothee A1 - Dreier, Larissa A1 - Zenz, Daniel A1 - Wager, Julia A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - "Manchmal gehen die Faxgeräte gerade nicht so wie sie sollen. Dann kommt irgendwie nichts an und dann ruft man das fünfte Mal an." - Nutzung von Design Thinking zur partizipativen Entwicklung einer elektronischen Fallakte in der pädiatrischen Palliativversorgung T2 - 20. Deutscher Kongress für Versorgungsforschung, 06. - 08.10.2021, digital Y1 - 2021 U6 - http://dx.doi.org/10.3205/21dkvf220 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Laser, Johannes A1 - Rasche, Peter A1 - Vollmar, Horst Christian A1 - Ehlers, Jan P A1 - Kernebeck, Sven T1 - Involving Health Care Professionals in the Development of Electronic Health Records: Scoping Review JF - JMIR Human Factors N2 - Electronic health records (EHRs) are a promising approach to document and map (complex) health information gathered in health care worldwide. However, possible unintended consequences during use, which can occur owing to low usability or the lack of adaption to existing workflows (eg, high cognitive load), may pose a challenge. To prevent this, the involvement of users in the development of EHRs is crucial and growing. Overall, involvement is designed to be very multifaceted, for example, in terms of the timing, frequency, or even methods used to capture user preferences. Setting, users and their needs, and the context and practice of health care must be considered in the design and subsequent implementation of EHRs. Many different approaches to user involvement exist, each requiring a variety of methodological choices. The aim of the study was to provide an overview of the existing forms of user involvement and the circumstances they need and to provide support for the planning of new involvement processes. We conducted a scoping review to provide a database for future projects on which design of inclusion is worthwhile and to show the diversity of reporting. Using a very broad search string, we searched the PubMed, CINAHL, and Scopus databases. In addition, we searched Google Scholar. Hits were screened according to scoping review methodology and then examined, focusing on methods and materials, participants, frequency and design of the development, and competencies of the researchers involved. In total, 70 articles were included in the final analysis. There was a wide range of methods of involvement. Physicians and nurses were the most frequently included groups and, in most cases, were involved only once in the process. The approach of involvement (eg, co-design) was not specified in most of the studies (44/70, 63%). Further qualitative deficiencies in the reporting were evident in the presentation of the competences of members of the research and development teams. Think-aloud sessions, interviews, and prototypes were frequently used. This review provides insights into the diversity of health care professionals’ involvement in the development of EHRs. It provides an overview of the different approaches in various fields of health care. However, it also shows the necessity of considering quality standards in the development of EHRs together with future users and the need for reporting this in future studies. Y1 - 2023 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173050 VL - 10 SP - e45598 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Dreier, Larissa Alicia A1 - Meyer, Dorothee A1 - Goletz, Grazyna A1 - Zenz, Daniel A1 - Wager, Julia A1 - Ehlers, Jan Peter A1 - Zernikow, Boris T1 - Nutzer*innenzentrierte Entwicklung einer elektronischen Patient*innenakte für die pädiatrische Palliativversorgung – Ergebnisse von Fokusgruppeninterviews mit Pflegenden im stationären Setting. JF - Zeitschrift für Palliativmedizin Y1 - 2020 U6 - http://dx.doi.org/10.1055/s-0040-1714990 VL - 21 IS - 5 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Dreier, Larissa Alicia A1 - Meyer, Dorothee A1 - Goletz, Grazyna A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Wager, Julia T1 - Nutzer*innenzentrierte Entwicklung einer digitalen Patient*innenakte in der pädiatrischen Palliativversorgung. Y1 - 2020 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Dreier, Larissa A1 - Meyer, Dorothee A1 - Goletz, Graznya A1 - Zenz, D. A1 - Wager, Julia A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Nutzung von Mock-ups im Co-Design-Prozess der partizipativen Entwicklung einer stationären elektronischen Patient*innenakte für die pädiatrische Palliativversorgung - ein Erfahrungsbericht JF - 19. Deutscher Kongress für Versorgungsforschung, Deutsches Netzwerk für Versorgungsforschung e.V, September 2020, online Y1 - 2020 U6 - http://dx.doi.org/10.3205/20dkvf117 ER - TY - CHAP A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Ehlers, Jan Peter T1 - Projektbericht – partizipative Entwicklung eines elektronischen Aktensystems– Erfahrungen und Übertragung auf ePA und ePA-nahe Anwendungen. T2 - eHealth Monitor 2022 Y1 - 2023 SN - 978-3-95466-759-8 ER - TY - CHAP A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Jux, Chantal A1 - Laser, Johannes A1 - Ehlers, Jan Peter T1 - Einbezug von Versorger:innen in die Entwicklung und Evaluation elektronischer Gesundheitsakten - ein Scoping Review T2 - 21. Deutscher Kongress für Versorgungsforschung, Deutsches Netzwerk Versorgungsforschung e. V., 05.10. - 07.10.2022, Potsdam Y1 - 2022 U6 - http://dx.doi.org/10.3205/22dkvf342 ER -