TY  - JOUR
A1  - Bultmann, Johanna Christine
A1  - Beierlein, Volker
A1  - Romer, Georg
A1  - Möller, Birgit
A1  - Koch, Uwe
A1  - Bergelt, Corinna
T1  - Parental cancer: Health-related quality of life and current psychosocial support needs of cancer survivors and their children
JF  - International journal of cancer
N2  - The presence of cancer and additional parental responsibilities can increase strain for individual patients as well as for their children. The construct of health-related quality of life (HRQL) is appropriate to measure a combination of physical, mental and social consequences as a result of disease. However, previous research has merely focused on symptom checklists. This study addresses the following questions: (i) does HRQL in children and their parents with cancer differ compared to the general population? (ii) Are there any variables that are associated with HRQL in children? (iii) What are current psychosocial support needs? A population-based survey of 976 survivors (<6 years post diagnosis) with minor children between 6 and 18 years (n = 1,449) was conducted with two German cancer registries. HRQL was assessed using SF-8 (survivors) and Kidscreen (children). The results were compared to normative populations, and predictors associated with HRQL in children were evaluated within a multilevel model. We found that the HRQL in children was better compared to the norm. Only children with support needs had worse HRQL. Older age, having a mother with cancer, having a parent not living together with a partner, and worse parental physical and mental health influenced HRQL in children. Illness characteristics were irrelevant. Even with a mean of 3.5 years after diagnosis, survivors had lower physical and mental health compared to the norm. Our findings reinforce the need for health professionals to pay attention to younger patients and their children. Even years after diagnosis, life might not have returned to normal.
KW  - Adolescent
KW  - Adult
KW  - Child
KW  - Child Health Services
KW  - Cross-Sectional Studies
KW  - Female
KW  - Follow-Up Studies
KW  - Health Services Needs and Demand
KW  - Health Status
KW  - Humans
KW  - Male
KW  - Middle Aged
KW  - Needs Assessment
KW  - Neoplasms/psychology
KW  - Parents/psychology
KW  - Prognosis
KW  - Psychology
KW  - Quality of Life
KW  - Social Support
KW  - Stress
KW  - Psychological
KW  - Surveys and Questionnaires
KW  - Survivors/psychology
Y1  - 2014
U6  - http://dx.doi.org/10.1002/ijc.28905
VL  - 135
SP  - 2668
EP  - 2677
ER  - 
TY  - JOUR
A1  - Becker, Inga
A1  - Auer, Matthias
A1  - Barkmann, Claus
A1  - Fuss, Johannes
A1  - Möller, Birgit
A1  - Nieder, Timo O.
A1  - Fahrenkrug, Saskia
A1  - Hildebrandt, Thomas
A1  - Richter-Appelt, Hertha
T1  - A Cross-Sectional Multicenter Study of Multidimensional Body Image in Adolescents and Adults with Gender Dysphoria Before and After Transition-Related Medical Interventions
JF  - Archives of sexual behavior
N2  - Persistent feelings of gender dysphoria (GD) are accompanied by distress and body dissatisfaction in most clinically referred adolescents and adults. Transition-related medical interventions (e.g., puberty suppression, hormones, or surgery) may alleviate body dissatisfaction. The aim of the present cross-sectional study was to compare multidimensional body image across clinically referred adolescents and adults undergoing different transition-related medical interventions. Two clinical samples of adolescents (n = 82) and adults (n = 120) referred to specialized departments of four different transgender health services in Germany participated in the study. In total, 202 individuals from the female-to-male (FtM individuals) and male-to-female (MtF individuals) spectrum aged 14-74 years were included at different stages of their transition. Four scales assessing multidimensional aspects of body image (measured by the Body Image Assessment Questionnaire, FBeK) were compared across three groups: sample, gender, and medical interventions (while controlling for age and treatment duration). The results indicated less favorable body image scores compared with the norm in both adolescents and adults with GD. Individuals who had undergone transition-related medical interventions presented a significantly better body image on two of the four scales. Differences according to gender and age were also present. These findings suggest that medical interventions, especially gender-affirming hormones and surgery, are generally beneficial to the body image in individuals with GD. However, not all of the less favorable outcomes in multidimensional body image were positively influenced by the treatment conditions and may thus benefit from additional integrative counseling before and during transition.
KW  - Adolescent
KW  - Adult
KW  - Aged
KW  - Body Image/psychology
KW  - Cross-Sectional Studies
KW  - Female
KW  - Gender Dysphoria/psychology/therapy
KW  - Gender Identity
KW  - Germany
KW  - Hormones
KW  - Humans
KW  - Male
KW  - Middle Aged
KW  - Psychology
KW  - Sexual Maturation
KW  - Surveys and Questionnaires
KW  - Transgender Persons/psychology
KW  - Transsexualism/psychology/therapy
KW  - Young Adult
Y1  - 2018
U6  - http://dx.doi.org/10.1007/s10508-018-1278-4
VL  - 47
SP  - 2335
EP  - 2347
ER  -