TY - JOUR A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Kernebeck, Sven A1 - Dreier, Larissa Alice A1 - Meyer, Dorothee A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care: A Think-Aloud Study JF - Children N2 - Background: Pediatric palliative care (PPC) patients experience years of multisectoral and professional care. An electronic cross-facility health record (ECHR) system can support the immediate exchange of information among PPC professionals. Based on a needs assessment, a prototype ECHR system was developed. Methods: To evaluate potential users’ perspective regarding the system, a qualitative observational study was conducted consisting of a concurrent think-aloud session and a semi-structured qualitative interview. Results: Twenty PPC professionals (nurses, physicians) from specialized outpatient PPC teams, a PPC unit, and medical offices rated the ECHR system as a helpful tool to improve the exchange and collection of information, communication between PPC professionals, and treatment planning. From the user’s point of view, the basic logic of the ECHR system should be further adapted to improve the interaction of data remirrored from patient records of outpatient and inpatient care with those entered via the system. The users wished for further functions (text search) and content (information on therapies). Some content, such as the treatment process, needs to be further adapted. Conclusion: The developed ECHR system needs to be more specific in some features by offering all available information; while for other features, be less specific to offer a quick overview. The ability to share information promptly and automatically was seen as a tremendous improvement to the quality of care for PPC patients. Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173191 SN - 2227-9067 VL - 8 SP - 839 ER - TY - JOUR A1 - Kernebeck, Sven A1 - Jux, Chantal A1 - Busse, Theresa Sophie A1 - Meyer, Dorothee A1 - Dreier, Larissa Alice A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians JF - Children N2 - Background: Electronic medical records (EMRs) play a key role in improving documentation and quality of care in paediatric palliative care (PPC). Inadequate EMR design can cause incorrect prescription and administration of medications. Due to the fact of complex diseases and the resulting high level of medical complexity, patients in PPC are vulnerable to medication errors. Consequently, involving users in the development process is important. Therefore, the aim of this study was to evaluate the acceptance of a medication module from the perspective of potential users in PPC and to involve them in the development process. Methods: A qualitative observational study was conducted with 10 nurses and four physicians using a concurrent think-aloud protocol and semi-structured qualitative interviews. A qualitative content analysis was applied based on a unified theory of acceptance and use of technology. Results: Requirements from the user’s perspective could be identified as possible influences on acceptance and actual use. Requirements were grouped into the categories “performance expectancies” and “effort expectancies”. Conclusions: The results serve as a basis for further development. Attention should be given to the reduction of display fragmentation, as it decreases cognitive load. Further approaches to evaluation should be taken. Y1 - 2022 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173146 SN - 2227-9067 VL - 9 SP - 82 ER - TY - JOUR A1 - Kernebeck, Sven A1 - Jux, Chantal A1 - Busse, Theresa Sophie A1 - Meyer, Dorothee A1 - Dreier, Larissa Alice A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians JF - Children N2 - Background: Electronic medical records (EMRs) play a key role in improving documentation and quality of care in paediatric palliative care (PPC). Inadequate EMR design can cause incorrect prescription and administration of medications. Due to the fact of complex diseases and the resulting high level of medical complexity, patients in PPC are vulnerable to medication errors. Consequently, involving users in the development process is important. Therefore, the aim of this study was to evaluate the acceptance of a medication module from the perspective of potential users in PPC and to involve them in the development process. Methods: A qualitative observational study was conducted with 10 nurses and four physicians using a concurrent think-aloud protocol and semi-structured qualitative interviews. A qualitative content analysis was applied based on a unified theory of acceptance and use of technology. Results: Requirements from the user’s perspective could be identified as possible influences on acceptance and actual use. Requirements were grouped into the categories “performance expectancies” and “effort expectancies”. Conclusions: The results serve as a basis for further development. Attention should be given to the reduction of display fragmentation, as it decreases cognitive load. Further approaches to evaluation should be taken. Y1 - 2022 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173158 SN - 2227-9067 VL - 9 SP - 82 ER - TY - CHAP A1 - Kernebeck, Sven A1 - Busse, Theresa Sophie A1 - Kramer, Ursula A1 - Redaelli, Marcus A1 - Ehlers, Jan Peter A1 - Vollmar, Horst Christian T1 - Pandemie-Management und Digital Health - Merkmale und Qualität von Smartphone-Apps im Kontext der COVID-19 Pandemie T2 - 19. Deutscher Kongress für Versorgungsforschung, September 2020, online Y1 - 2020 U6 - http://dx.doi.org/10.3205/20dkvf036 ER - TY - CHAP A1 - Jux, Chantal A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Dreier, L.A. A1 - Meyer, Dorothee A1 - Zenz, Daniel A1 - Wager, Julia A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Nutzung von User-Stories zur partizipativen Entwicklung einer elektronischen Patient*innenakte (EPA) für die spezialisierte ambulante pädiatrische Palliativversorgung (SAPPV) - ein Erfahrungsbericht aus Perspektive der Versorgungsforschung T2 - 20. Deutscher Kongress für Versorgungsforschung, 08.10.2021, digital Y1 - 2021 U6 - http://dx.doi.org/10.3205/21dkvf254 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Dreier, Larissa A1 - Meyer, Dorothee A1 - Goletz, Graznya A1 - Zenz, D. A1 - Wager, Julia A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Nutzung von Mock-ups im Co-Design-Prozess der partizipativen Entwicklung einer stationären elektronischen Patient*innenakte für die pädiatrische Palliativversorgung - ein Erfahrungsbericht JF - 19. Deutscher Kongress für Versorgungsforschung, Deutsches Netzwerk für Versorgungsforschung e.V, September 2020, online Y1 - 2020 U6 - http://dx.doi.org/10.3205/20dkvf117 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Dreier, Larissa Alicia A1 - Meyer, Dorothee A1 - Goletz, Grazyna A1 - Zenz, Daniel A1 - Wager, Julia A1 - Ehlers, Jan Peter A1 - Zernikow, Boris T1 - Nutzer*innenzentrierte Entwicklung einer elektronischen Patient*innenakte für die pädiatrische Palliativversorgung – Ergebnisse von Fokusgruppeninterviews mit Pflegenden im stationären Setting. JF - Zeitschrift für Palliativmedizin Y1 - 2020 U6 - http://dx.doi.org/10.1055/s-0040-1714990 VL - 21 IS - 5 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Dreier, Larissa Alicia A1 - Meyer, Dorothee A1 - Goletz, Grazyna A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Wager, Julia T1 - Nutzer*innenzentrierte Entwicklung einer digitalen Patient*innenakte in der pädiatrischen Palliativversorgung. Y1 - 2020 ER - TY - JOUR A1 - Nitsche, Julia A1 - Smetana, Jan A1 - Kochanek, Tonja A1 - Busse, Theresa Sophie A1 - Kernebeck, Sven A1 - Taetz-Harrer, Angelika A1 - Zupanic, Michaela A1 - Eulitz, Mona A1 - Ehlers, Jan P. T1 - Needs must when the devil drives - Migration of an entire university to digital teaching JF - Zeitschrift für Hochschulentwicklung Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173168 VL - 16 IS - 3 ER - TY - JOUR A1 - Busse, Theresa Sophie A1 - Jux, Chantal A1 - Kernebeck, Sven A1 - Dreier, Larissa Alice A1 - Meyer, Dorothee A1 - Zenz, Daniel A1 - Zernikow, Boris A1 - Ehlers, Jan Peter T1 - Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach JF - Children N2 - Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. Methods: Guided by design thinking, first, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Based on the needs stated in the interviews, prototypes of the ECHR were developed and discussed in the FGs. The indicated needs were supplemented and specified in an iterative process. The prototypes were further adapted according to these results. The unified theory of acceptance and use of technology was the basic model in the evaluation of needs. Results: Across seven main categories, past and current medication, emergency view, and messaging functions were identified as the participants’ desired core components of an ECHR. Utilizing design thinking facilitated the explicit articulation of user needs. Conclusions: Developing an ECHR with the content identified would allow for real-time data during emergencies, tracking what other PPC professionals have done, and making the applied treatments visible to others. This would offer a broader picture of the complex conditions common to PPC. Y1 - 2021 U6 - http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:hbz:836-opus-173245 SN - 2227-9067 VL - 8 SP - 602 ER -