@article{MeyerDormann2023, author = {Meyer, Klaus and Dormann, Harald}, title = {F{\"u}rther Gespr{\"a}che: Expertenforum f{\"u}r den Rettungsdienst mit Forderungen an Politik und Gesellschaft}, series = {Notfall + Rettungsmedizin}, journal = {Notfall + Rettungsmedizin}, doi = {10.25974/fhms-16455}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-164551}, pages = {1 -- 8}, year = {2023}, abstract = {Die rettungsdienstliche Versorgung, die Rettungsfachkr{\"a}fteausbildung und die rechtlichen Vorraussetzungen in Deutschland bieten aktuell keine guten Rahmenbedingungen f{\"u}r die Zukunft. Ein Expertenforum mit deutschlandweiten Akteuren aus Wissenschaft, Bildung und Rettungsdienst diskutierten im Rahmen der F{\"u}rther Gespr{\"a}che die Herausforderungen der Professionalisierung und der Kompetenzentwicklung des Rettungsdienstes und der pr{\"a}klinischen Versorgung in Deutschland. Die zentralen Ergebnisse und Schwerpunktthemen wurden in 7 Thesen zusammengefasst und konkrete L{\"o}sungsans{\"a}tze entwickelt. Das Spannungsfeld umfasst hierbei die Anforderungen und Versorgungsbedarfe, die Pr{\"a}vention und erweiterte Versorgungskomponenten, die Digitalisierungsstrategie, integrierte Leitstellen und vernetzte Gesundheitsdienstleistungen, Personalentwicklung und -bindung sowie Qualifikationsniveaus und Notarztqualifikation.}, language = {de} } @article{KohmaescherPrimassinHeileretal.2023, author = {Kohm{\"a}scher, Anke and Primaßin, Annika and Heiler, Sabrina and da Costa Avelar, Patricia and Franken, Marie-Christine and Heim, Stefan}, title = {Effectiveness of Stuttering Modification Treatment in School-Age Children Who Stutter: A Randomized Clinical Trial}, series = {Journal of Speech, Language, and Hearing Research}, volume = {66}, journal = {Journal of Speech, Language, and Hearing Research}, number = {10}, doi = {10.25974/fhms-17172}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-171722}, pages = {1 -- 15}, year = {2023}, abstract = {Purpose: This study investigated the effectiveness of the stuttering modification intervention Kinder D{\"u}rfen Stottern (KIDS) in school-age children who stutter. Method: Seventy-three children who stutter were included in this multicenter, two-group parallel, randomized, wait-list controlled trial with a follow-up of 12 months. Children aged 7-11 years were recruited from 34 centers for speech therapy and randomized to either the immediate-treatment group or the 3 months delayed-treatment group. KIDS was provided by 26 clinicians who followed a treatment manual. Although the primary outcome measure was the impact of stuttering (Overall Assessment of the Speaker's Experience of Stuttering-School-Age [OASES-S]), the secondary outcomes included objective and subjective data on stuttering severity. Results: At 3 months postrandomization, the mean score changes of the OASESS differed significantly between the experimental (n = 33) and control group (n = 29; p = .026). Furthermore, treatment outcomes up to 12 months were analyzed (n = 59), indicating large effects of time on the OASES-S score (p < .001, partial η2 = .324). This was paralleled by significant improvements in parental ratings and objective ratings (stuttering severity, frequency, and physical concomitants). Conclusions: The significant short-term treatment effects in the OASES-S are in line with the (initial) focus of KIDS on cognitive and affective aspects of stuttering. Over 12 months, these changes were maintained and accompanied by behavioral improvements. The results suggest that individual treatment with KIDS is an adequate treatment option for this age group.}, language = {en} } @article{RistauOettingRossBuescher2023, author = {Ristau, Patrick and Oetting-Roß, Claudia and B{\"u}scher, Andreas}, title = {From Surviving to Living (on): A Grounded Theory Study on Coping in People with Pancreatic Cancer}, series = {Journal of Patient Experience}, volume = {10}, journal = {Journal of Patient Experience}, doi = {10.25974/fhms-17457}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-174579}, pages = {1 -- 8}, year = {2023}, language = {en} } @article{KoskinenStoltTramWidmeretal.2023, author = {Koskinen, Iina and Stolt, Minna and Tram Widmer, Christine and Pernica, Katrin and D{\"u}tthorn, Nadin and Groddeck, Luisa and Lunddahl Bager, Ida and Finn, Yvonne and Smyth, Siobhan and Virtanen, Heli}, title = {Methodological approaches and competence areas of nursing students in virtual reality simulation research - A scoping review}, series = {Nurse Education Today}, volume = {133}, journal = {Nurse Education Today}, doi = {10.25974/fhms-17477}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-174771}, pages = {106033}, year = {2023}, language = {en} } @article{ManiettaPurwinsReinhardetal.2023, author = {Manietta, Christina and Purwins, Daniel and Reinhard, Anneke and Feige, Melanie and Knecht, Christiane and Alpers, Birgit and Roes, Martina}, title = {Contextualizing the results of an integrative review on the characteristics of dementia‑friendly hospitals: a workshop with professional dementia experts}, series = {BMC Geriatrics}, volume = {23:678}, journal = {BMC Geriatrics}, doi = {10.25974/fhms-17208}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-172088}, pages = {1 -- 17}, year = {2023}, language = {en} } @article{BusseJuxLaseretal.2023, author = {Busse, Theresa Sophie and Jux, Chantal and Laser, Johannes and Rasche, Peter and Vollmar, Horst Christian and Ehlers, Jan P and Kernebeck, Sven}, title = {Involving Health Care Professionals in the Development of Electronic Health Records: Scoping Review}, series = {JMIR Human Factors}, volume = {10}, journal = {JMIR Human Factors}, doi = {10.25974/fhms-17305}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173050}, pages = {e45598}, year = {2023}, abstract = {Electronic health records (EHRs) are a promising approach to document and map (complex) health information gathered in health care worldwide. However, possible unintended consequences during use, which can occur owing to low usability or the lack of adaption to existing workflows (eg, high cognitive load), may pose a challenge. To prevent this, the involvement of users in the development of EHRs is crucial and growing. Overall, involvement is designed to be very multifaceted, for example, in terms of the timing, frequency, or even methods used to capture user preferences. Setting, users and their needs, and the context and practice of health care must be considered in the design and subsequent implementation of EHRs. Many different approaches to user involvement exist, each requiring a variety of methodological choices. The aim of the study was to provide an overview of the existing forms of user involvement and the circumstances they need and to provide support for the planning of new involvement processes. We conducted a scoping review to provide a database for future projects on which design of inclusion is worthwhile and to show the diversity of reporting. Using a very broad search string, we searched the PubMed, CINAHL, and Scopus databases. In addition, we searched Google Scholar. Hits were screened according to scoping review methodology and then examined, focusing on methods and materials, participants, frequency and design of the development, and competencies of the researchers involved. In total, 70 articles were included in the final analysis. There was a wide range of methods of involvement. Physicians and nurses were the most frequently included groups and, in most cases, were involved only once in the process. The approach of involvement (eg, co-design) was not specified in most of the studies (44/70, 63\%). Further qualitative deficiencies in the reporting were evident in the presentation of the competences of members of the research and development teams. Think-aloud sessions, interviews, and prototypes were frequently used. This review provides insights into the diversity of health care professionals' involvement in the development of EHRs. It provides an overview of the different approaches in various fields of health care. However, it also shows the necessity of considering quality standards in the development of EHRs together with future users and the need for reporting this in future studies.}, language = {de} } @article{EnglertPetersPrzysuchaetal.2023, author = {Englert, Nathalie and Peters, Lara and Przysucha, Mareike and Noelle, Marco and H{\"u}lsken-Giesler, Manfred and B{\"u}scher, Andreas}, title = {H{\"a}usliche Pflegearrangements: Untersuchung der Inanspruchnahme von Unterst{\"u}tzungsleistungen im Zusammenhang mit dem sozio{\"o}konomischen Status}, series = {Bundesgesundheitsblatt}, volume = {66 / 2023}, journal = {Bundesgesundheitsblatt}, number = {2023 / 66}, doi = {10.25974/fhms-17933}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-179336}, pages = {540 -- 548}, year = {2023}, language = {de} } @article{KornBoettcherBusseetal.2022, author = {Korn, Sandra and B{\"o}ttcher, Maximilian David and Busse, Theresa Sophie and Kernebeck, Sven and Breucha, Michael and Ehlers, Jan and Kahlert, Christoph and Weitz, J{\"u}rgen and Bork, Ulrich}, title = {Use and Perception of Digital Health Technologies by Surgical Patients in Germany in the Pre-COVID-19 Era: Survey Study}, series = {JMIR Formative Research}, volume = {6}, journal = {JMIR Formative Research}, doi = {10.25974/fhms-17304}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173046}, pages = {e33985}, year = {2022}, abstract = {This survey study investigates surgical patients' use and perception of digital health technologies in Germany in the pre-COVID-19 era. The objective of this study was to relate surgical patients' characteristics to the use and perception of several digital health technologies. In this single-center, cross-sectional survey study in the outpatient department of a university hospital in Germany, 406 patients completed a questionnaire with the following three domains: general information and use of the internet, smartphones, and general digital health aspects. Analyses were stratified by age group and highest education level achieved. We found significant age-based differences in most of the evaluated aspects. Younger patients were more open to using new technologies in private and medical settings but had more security concerns. Although searching for information on illnesses on the web was common, the overall acceptance of and trust in web-based consultations were rather low, with <50\% of patients in each age group reporting acceptance and trust. More people with academic qualifications than without academic qualifications searched for information on the web before visiting physicians (73/121, 60.3\% and 100/240, 41.7\%, respectively). Patients with academic degrees were also more engaged in health-related information and communication technology use. These results support the need for eHealth literacy, health literacy, and available digital devices and internet access to support the active, meaningful use of information and communication technologies in health care. Uncertainties and a lack of knowledge exist, especially regarding telemedicine and the use of medical and health apps. This is especially pronounced among older patients and patients with a low education status.}, language = {de} } @article{NitscheBusseKernebecketal.2022, author = {Nitsche, Julia and Busse, Theresa Sophie and Kernebeck, Sven and Ehlers, Jan P.}, title = {Virtual Classrooms and Their Challenge of Interaction—An Evaluation of Chat Activities and Logs in an Online Course about Digital Medicine with Heterogeneous Participants}, series = {International Journal of Environmental Research and Public Health}, volume = {19}, journal = {International Journal of Environmental Research and Public Health}, issn = {1661-7827}, doi = {10.25974/fhms-17308}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173083}, pages = {10184}, year = {2022}, abstract = {Learning digital competencies can be successful if the information is also tried out immediately using interactive elements. However, interactive teaching poses a particular challenge, especially in large group formats. Various strategies are used to promote interaction, but there is little known about the results. This article shows different strategies and evaluates their influence on the interaction rate in a large group course over two terms that teaches digital medicine. Log files and participation in surveys as well as participation in chat were quantitatively evaluated. In addition, the chat messages themselves were evaluated qualitatively. For the evaluation, relation to the total number of participants was particularly relevant in order to be able to determine an interaction rate in the individual course sessions. A maximum average interaction rate of 90.97\% could be determined over the entire term while the participants wrote an average of 3.96 comments during a session in the chat. In summary, this research could show that interactive elements should be well planned and used at regular intervals in order to reap the benefits.}, language = {de} } @article{BusseNitscheKernebecketal.2022, author = {Busse, Theresa Sophie and Nitsche, Julia and Kernebeck, Sven and Jux, Chantal and Weitz, J{\"u}rgen and Ehlers, Jan P. and Bork, Ulrich}, title = {Approaches to Improvement of Digital Health Literacy (eHL) in the Context of Person-Centered Care}, series = {International Journal of Environmental Research and Public Health}, volume = {19}, journal = {International Journal of Environmental Research and Public Health}, issn = {1661-7827}, doi = {10.25974/fhms-17311}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173115}, pages = {8309}, year = {2022}, abstract = {The skills, knowledge and resources to search for, find, understand, evaluate and apply health information is defined as health literacy (HL). If individuals want to use health information from the Internet, they need Digital Health Literacy (eHL), which in addition to HL also includes, for example, media literacy. If information cannot be found or understood by patients due to low (e)HL, patients will not have the opportunity to make informed decisions. In addition, many health apps for self-management or prevention also require (e)HL. Thus, it follows that active participation in healthcare, in terms of Person-Centered Care (PCC) is only possible through (e)HL. Currently, there is a great need to strengthen these competencies in society to achieve increased empowerment of patients and their health. However, at the same time, there is a need to train and improve competencies in the field of healthcare professionals so that they can counsel and guide patients. This article provides an overview with a focus on HL and eHL in healthcare, shows the opportunities to adapt services and describes the possible handling of patients with low (e)HL. In addition, the opportunities for patients and healthcare professionals to improve (e)HL are highlighted.}, language = {de} } @article{KernebeckBusseJuxetal.2022, author = {Kernebeck, Sven and Busse, Theresa Sophie and Jux, Chantal and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Evaluation of an Electronic Medical Record Module for Nursing Documentation in Paediatric Palliative Care: Involvement of Nurses with a Think-Aloud Approach}, series = {International Journal of Environmental Research and Public Health}, volume = {19}, journal = {International Journal of Environmental Research and Public Health}, issn = {1661-7827}, doi = {10.25974/fhms-17313}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173137}, pages = {3637}, year = {2022}, abstract = {Background: Paediatric palliative care (PPC) is a noncurative approach to the care of children and adolescents with life-limiting and life-threatening illnesses. Electronic medical records (EMRs) play an important role in documenting such complex processes. Despite their benefits, they can introduce unintended consequences if future users are not involved in their development. Aim: The aim of this study was to evaluate the acceptance of a novel module for nursing documentation by nurses working in the context of PPC. Methods: An observational study employing concurrent think-aloud and semi-structured qualitative interviews were conducted with 11 nurses working in PPC. Based on the main determinants of the unified theory of acceptance and use of technology (UTAUT), data were analysed using qualitative content analysis. Results: The main determinants of UTAUT were found to potentially influence acceptance of the novel module. Participants perceived the module to be self-explanatory and intuitive. Some adaptations, such as the reduction of fragmentation in the display, the optimization of confusing mouseover fields, and the use of familiar nursing terminology, are reasonable ways of increasing software adoption. Conclusions: After adaptation of the modules based on the results, further evaluation with the participation of future users is required.}, language = {de} } @article{KernebeckJuxBusseetal.2022, author = {Kernebeck, Sven and Jux, Chantal and Busse, Theresa Sophie and Meyer, Dorothee and Dreier, Larissa Alice and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians}, series = {Children}, volume = {9}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17314}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173146}, pages = {82}, year = {2022}, abstract = {Background: Electronic medical records (EMRs) play a key role in improving documentation and quality of care in paediatric palliative care (PPC). Inadequate EMR design can cause incorrect prescription and administration of medications. Due to the fact of complex diseases and the resulting high level of medical complexity, patients in PPC are vulnerable to medication errors. Consequently, involving users in the development process is important. Therefore, the aim of this study was to evaluate the acceptance of a medication module from the perspective of potential users in PPC and to involve them in the development process. Methods: A qualitative observational study was conducted with 10 nurses and four physicians using a concurrent think-aloud protocol and semi-structured qualitative interviews. A qualitative content analysis was applied based on a unified theory of acceptance and use of technology. Results: Requirements from the user's perspective could be identified as possible influences on acceptance and actual use. Requirements were grouped into the categories "performance expectancies" and "effort expectancies". Conclusions: The results serve as a basis for further development. Attention should be given to the reduction of display fragmentation, as it decreases cognitive load. Further approaches to evaluation should be taken.}, language = {de} } @article{KernebeckJuxBusseetal.2022, author = {Kernebeck, Sven and Jux, Chantal and Busse, Theresa Sophie and Meyer, Dorothee and Dreier, Larissa Alice and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians}, series = {Children}, volume = {9}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17315}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173158}, pages = {82}, year = {2022}, abstract = {Background: Electronic medical records (EMRs) play a key role in improving documentation and quality of care in paediatric palliative care (PPC). Inadequate EMR design can cause incorrect prescription and administration of medications. Due to the fact of complex diseases and the resulting high level of medical complexity, patients in PPC are vulnerable to medication errors. Consequently, involving users in the development process is important. Therefore, the aim of this study was to evaluate the acceptance of a medication module from the perspective of potential users in PPC and to involve them in the development process. Methods: A qualitative observational study was conducted with 10 nurses and four physicians using a concurrent think-aloud protocol and semi-structured qualitative interviews. A qualitative content analysis was applied based on a unified theory of acceptance and use of technology. Results: Requirements from the user's perspective could be identified as possible influences on acceptance and actual use. Requirements were grouped into the categories "performance expectancies" and "effort expectancies". Conclusions: The results serve as a basis for further development. Attention should be given to the reduction of display fragmentation, as it decreases cognitive load. Further approaches to evaluation should be taken.}, language = {de} } @article{ClaassenJeilerMartensetal.2021, author = {Claaßen, Ailina and Jeiler, Katharina and Martens, Dorothee and Oetting-Roß, Claudia}, title = {Handlungsfelder und Arbeitsbereiche nach dem dualen Pflegestudium - Eine Verbleibstudie der FH M{\"u}nster.}, series = {Heilberufe Science}, journal = {Heilberufe Science}, publisher = {Springer}, doi = {10.25974/fhms-17012}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-170128}, pages = {30 -- 38}, year = {2021}, language = {de} } @article{BusseJuxKernebecketal.2021, author = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Meister, Sven and Ehlers, Jan P.}, title = {Steigerung der Versorgungsqualit{\"a}t in der Palliativversorgung durch elektronische Gesundheitsakten}, series = {Monitor Versorgungsforschung}, volume = {14}, journal = {Monitor Versorgungsforschung}, issn = {1866-0533}, doi = {10.25974/fhms-17303}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173035}, pages = {45 -- 50}, year = {2021}, language = {de} } @article{BusseKernebeckNefetal.2021, author = {Busse, Theresa Sophie and Kernebeck, Sven and Nef, Larissa and Rebacz, Patrick and Kickbusch, Ilona and Ehlers, Jan Peter}, title = {Views on Using Social Robots in Professional Caregiving: Content Analysis of a Scenario Method Workshop (Preprint)}, series = {J Med Internet Res}, volume = {23}, journal = {J Med Internet Res}, number = {11}, doi = {10.25974/fhms-17307}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173072}, year = {2021}, abstract = {BACKGROUND Interest in digital technologies in the health care sector is growing and can be a way to reduce the burden on professional caregivers while helping people to become more independent. Social robots are regarded as a special form of technology that can be usefully applied in professional caregiving with the potential to focus on interpersonal contact. While implementation is progressing slowly, a debate on the concepts and applications of social robots in future care is necessary. OBJECTIVE In addition to existing studies with a focus on societal attitudes toward social robots, there is a need to understand the views of professional caregivers and patients. This study used desired future scenarios to collate the perspectives of experts and analyze the significance for developing the place of social robots in care. METHODS In February 2020, an expert workshop was held with 88 participants (health professionals and educators; [PhD] students of medicine, health care, professional care, and technology; patient advocates; software developers; government representatives; and research fellows) from Austria, Germany, and Switzerland. Using the scenario methodology, the possibilities of analog professional care (Analog Care), fully robotic professional care (Robotic Care), teams of robots and professional caregivers (Deep Care), and professional caregivers supported by robots (Smart Care) were discussed. The scenarios were used as a stimulus for the development of ideas about future professional caregiving. The discussion was evaluated using qualitative content analysis. RESULTS The majority of the experts were in favor of care in which people are supported by technology (Deep Care) and developed similar scenarios with a focus on dignity-centeredness. The discussions then focused on the steps necessary for its implementation, highlighting a strong need for the development of eHealth competence in society, a change in the training of professional caregivers, and cross-sectoral concepts. The experts also saw user acceptance as crucial to the use of robotics. This involves the acceptance of both professional caregivers and care recipients. CONCLUSIONS The literature review and subsequent workshop revealed how decision-making about the value of social robots depends on personal characteristics related to experience and values. There is therefore a strong need to recognize individual perspectives of care before social robots become an integrated part of care in the future.}, language = {de} } @article{NitscheSmetanaKochaneketal.2021, author = {Nitsche, Julia and Smetana, Jan and Kochanek, Tonja and Busse, Theresa Sophie and Kernebeck, Sven and Taetz-Harrer, Angelika and Zupanic, Michaela and Eulitz, Mona and Ehlers, Jan P.}, title = {Needs must when the devil drives - Migration of an entire university to digital teaching}, series = {Zeitschrift f{\"u}r Hochschulentwicklung}, volume = {16}, journal = {Zeitschrift f{\"u}r Hochschulentwicklung}, number = {3}, doi = {10.25974/fhms-17316}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173168}, year = {2021}, language = {en} } @article{KernebeckBusseEhlersetal.2021, author = {Kernebeck, Sven and Busse, Theresa Sophie and Ehlers, Jan Peter and Vollmar, Horst Christian}, title = {Adh{\"a}renz digitaler Interventionen im Gesundheitswesen: Definitionen, Methoden und offene Fragen}, series = {Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz}, volume = {64}, journal = {Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz}, issn = {1436-9990}, doi = {10.25974/fhms-17318}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173188}, pages = {1278 -- 1284}, year = {2021}, abstract = {AbstractMany digital interventions rely on the participation of their users to have a positive impact. In various areas it can be observed that the use of digital interventions is often reduced or fully discontinued by the users after a short period of time. This is seen as one of the main factors that can limit the effectiveness of digital interventions. In this context, the concept of adherence to digital interventions is becoming increasingly important. Adherence to digital interventions is roughly defined as "the degree to which the user followed the program as it was designed," which can also be paraphrased as "intended use" or "use as it is designed." However, both the theoretical-conceptual and practical discussions regarding adherence to digital interventions still receive too little attention.The aim of this narrative review article is to shed more light on the concept of adherence to digital interventions and to distinguish it from related concepts. It also discusses the methods and metrics that can be used to operationalize adherence and the predictors that positively influence adherence. Finally, needs for action to better address adherence are considered critically.}, language = {en} } @article{BusseJuxKernebecketal.2021, author = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care: A Think-Aloud Study}, series = {Children}, volume = {8}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17319}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173191}, pages = {839}, year = {2021}, abstract = {Background: Pediatric palliative care (PPC) patients experience years of multisectoral and professional care. An electronic cross-facility health record (ECHR) system can support the immediate exchange of information among PPC professionals. Based on a needs assessment, a prototype ECHR system was developed. Methods: To evaluate potential users' perspective regarding the system, a qualitative observational study was conducted consisting of a concurrent think-aloud session and a semi-structured qualitative interview. Results: Twenty PPC professionals (nurses, physicians) from specialized outpatient PPC teams, a PPC unit, and medical offices rated the ECHR system as a helpful tool to improve the exchange and collection of information, communication between PPC professionals, and treatment planning. From the user's point of view, the basic logic of the ECHR system should be further adapted to improve the interaction of data remirrored from patient records of outpatient and inpatient care with those entered via the system. The users wished for further functions (text search) and content (information on therapies). Some content, such as the treatment process, needs to be further adapted. Conclusion: The developed ECHR system needs to be more specific in some features by offering all available information; while for other features, be less specific to offer a quick overview. The ability to share information promptly and automatically was seen as a tremendous improvement to the quality of care for PPC patients.}, language = {en} } @article{KernebeckBusseJuxetal.2021, author = {Kernebeck, Sven and Busse, Theresa Sophie and Jux, Chantal and Meyer, Dorothee and Dreier, Larissa Alice and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians}, series = {Children}, volume = {8}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17321}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173219}, pages = {695}, year = {2021}, abstract = {Background: Electronic medical records (EMRs) offer a promising approach to mapping and documenting the complex information gathered in paediatric palliative care (PPC). However, if they are not well developed, poorly implemented EMRs have unintended consequences that may cause harm to patients. One approach to preventing such harm is the involvement of users in the participatory design to ensure user acceptance and patient safety. Therefore, the aim of this study is to evaluate the acceptance of a novel patient chart module (PCM) as part of an EMR from the perspective of potential users in PPC and to involve these professionals in the design process. Methods: A qualitative observational study with N = 16 PPC professionals (n = 10 nurses, n = 6 physicians) was conducted, including concurrent think aloud (CTA) and semi-structured interviews. A structured content analysis based on the Unified Theory of Acceptance and Use of Technology was applied. Results: The results can be summarized in terms of general observations, performance expectancy, effort expectancy and facilitating conditions, all of which are likely to have a positive influence on acceptance of the PCM from the user perspective in the context of PPC. Conclusions: The involvement of users in the development of EMRs is important for meeting the requirements in PPC. Further software adaptations are necessary to implement these requirements.}, language = {en} } @article{BusseJuxKernebecketal.2021, author = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach}, series = {Children}, volume = {8}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17324}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173245}, pages = {602}, year = {2021}, abstract = {Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. Methods: Guided by design thinking, first, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Based on the needs stated in the interviews, prototypes of the ECHR were developed and discussed in the FGs. The indicated needs were supplemented and specified in an iterative process. The prototypes were further adapted according to these results. The unified theory of acceptance and use of technology was the basic model in the evaluation of needs. Results: Across seven main categories, past and current medication, emergency view, and messaging functions were identified as the participants' desired core components of an ECHR. Utilizing design thinking facilitated the explicit articulation of user needs. Conclusions: Developing an ECHR with the content identified would allow for real-time data during emergencies, tracking what other PPC professionals have done, and making the applied treatments visible to others. This would offer a broader picture of the complex conditions common to PPC.}, language = {en} } @article{KernebeckKramerRedaellietal.2021, author = {Kernebeck, Sven and Kramer, Ursula and Redaelli, Marcus and Vollmar, Horst Christian}, title = {Bewerten, aber wie? - Kriterien f{\"u}r die Evaluation und das Reporting von Studien zu Gesundheits- und Medizin-Apps}, series = {Monitor Versorgungsforschung}, volume = {14}, journal = {Monitor Versorgungsforschung}, number = {2}, doi = {10.25974/fhms-17325}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173256}, year = {2021}, language = {en} } @article{MeyerKernebeckBusseetal.2021, author = {Meyer, Dorothee and Kernebeck, Sven and Busse, Theresa Sophie and Ehlers, Jan and Wager, Julia and Zernikow, Boris and Dreier, Larissa Alice}, title = {Electronic Health Records in Specialized Pediatric Palliative Care: A Qualitative Needs Assessment among Professionals Experienced and Inexperienced in Electronic Documentation}, series = {Children}, volume = {8}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17326}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173265}, pages = {249}, year = {2021}, abstract = {Background: Currently, to the best of our knowledge, no findings exist concerning the needs of professionals in specialized pediatric palliative care (PPC) regarding electronic health records (EHRs). Several studies have highlighted benefits concerning the use of EHRs in pediatrics. However, usability is strongly affected by the degree of adaptivity to the context of application. The aim of this study is to examine the needs of professionals concerning an EHR in the specialized PPC inpatient and outpatient settings. Methods: A qualitative research design was chosen to address the complex aspects of user demands. Focus group interviews and semi-structured one-on-one interviews were conducted with PPC professionals. N = 23 participants from inpatient and N = 11 participants from outpatient settings of specialized PPC representing various professions took part in the study. Results: The findings could be grouped into four categories: (1) attitude towards the current methods of documentation, (2) attitude towards electronic documentation in general, (3) general requirements for an EHR, and (4) content requirements for an EHR. Conclusions: Professionals in specialized PPC expect and experience many benefits of using electronic documentation. Their requirements for an EHR for inpatient and outpatient settings of PPC are largely consistent with EHRs for pediatrics. However, individual specifications and adaptations are necessary for this particular setting.}, language = {en} } @article{RistauOettingRossBuescher2020, author = {Ristau, Patrick and Oetting-Roß, Claudia and B{\"u}scher, Andreas}, title = {Mapping the knowledge on coping processes in patients with pancreatic cancer: a scoping review protocol.}, series = {Social Science Protocols}, volume = {3}, journal = {Social Science Protocols}, number = {1}, publisher = {Edinburgh Diamond}, doi = {10.25974/fhms-17011}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-170113}, pages = {1 -- 15}, year = {2020}, language = {en} } @article{KernebeckHollePogschebaetal.2019, author = {Kernebeck, Sven and Holle, Daniela and Pogscheba, Patrick and Jordan, Felix and Mertl, Fabian and Huldtgren, Alina and Bader, Sebastian and Kirste, Thomas and Teipel, Stefan and Holle, Bernhard and Halek, Margareta}, title = {A Tablet App- and Sensor-Based Assistive Technology Intervention for Informal Caregivers to Manage the Challenging Behavior of People With Dementia (the insideDEM Study): Protocol for a Feasibility Study (Preprint)}, series = {JMIR Res Protoc}, volume = {8}, journal = {JMIR Res Protoc}, number = {2}, doi = {10.25974/fhms-17306}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173061}, year = {2019}, abstract = {BACKGROUND Despite the enormous number of assistive technologies (ATs) in dementia care, the management of challenging behavior (CB) of persons with dementia (PwD) by informal caregivers in home care is widely disregarded. The first-line strategy to manage CB is to support the understanding of the underlying causes of CB to formulate individualized nonpharmacological interventions. App- and sensor-based approaches combining multimodal sensors (actimetry and other modalities) and caregiver information are innovative ways to support the understanding of CB for family caregivers. OBJECTIVE The main aim of this study is to describe the design of a feasibility study consisting of an outcome and a process evaluation of a newly developed app- and sensor-based intervention to manage CB of PwD for family caregivers at home. METHODS In this feasibility study, we perform an outcome and a process evaluation with a pre-post descriptive design over an 8-week intervention period. The Medical Research Council framework guides the design of this feasibility study. The data on 20 dyads (primary caregiver and PwD) are gathered through standardized questionnaires, protocols, and log files as well as semistructured qualitative interviews. The outcome measures (neuropsychiatric inventory and Cohen-Mansfield agitation inventory) are analyzed by using descriptive statistics and statistical tests relevant to the individual assessments (eg, chi-square test and Wilcoxon signed-rank test). For the analysis of the process data, the Unified Theory of Acceptance and Use of Technology is used. Log files are analyzed by using descriptive statistics, protocols are analyzed by using documentary analysis, and semistructured interviews are analyzed deductively using content analysis. RESULTS The newly developed app- and sensor-based AT has been developed and was evaluated until July in 2018. The recruitment of dyads started in September 2017 and was concluded in March 2018. The data collection was completed at the end of July 2018. CONCLUSIONS This study presents the protocol of the first feasibility study to encompass an outcome and process evaluation to assess a complex app- and sensor-based AT combining multimodal actimetry sensors for informal caregivers to manage CB. The feasibility study will provide in-depth information about the study procedure and on how to optimize the design of the intervention and its delivery. INTERNATIONAL REGISTERED REPOR DERR1-10.2196/11630}, language = {de} } @article{KernebeckHollePogschebaetal.2019, author = {Kernebeck, Sven and Holle, Daniela and Pogscheba, Patrick and Jordan, Felix and Mertl, Fabian and Huldtgren, Alina and Bader, Sebastian and Kirste, Thomas and Teipel, Stefan and Holle, Bernhard and Halek, Margareta}, title = {A Tablet App- and Sensor-Based Assistive Technology Intervention for Informal Caregivers to Manage the Challenging Behavior of People With Dementia (the insideDEM Study): Protocol for a Feasibility Study}, series = {JMIR Research Protocols}, volume = {8}, journal = {JMIR Research Protocols}, issn = {1929-0748}, doi = {10.25974/fhms-17327}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173274}, pages = {e11630}, year = {2019}, abstract = {Despite the enormous number of assistive technologies (ATs) in dementia care, the management of challenging behavior (CB) of persons with dementia (PwD) by informal caregivers in home care is widely disregarded. The first-line strategy to manage CB is to support the understanding of the underlying causes of CB to formulate individualized nonpharmacological interventions. App- and sensor-based approaches combining multimodal sensors (actimetry and other modalities) and caregiver information are innovative ways to support the understanding of CB for family caregivers. The main aim of this study is to describe the design of a feasibility study consisting of an outcome and a process evaluation of a newly developed app- and sensor-based intervention to manage CB of PwD for family caregivers at home. In this feasibility study, we perform an outcome and a process evaluation with a pre-post descriptive design over an 8-week intervention period. The Medical Research Council framework guides the design of this feasibility study. The data on 20 dyads (primary caregiver and PwD) are gathered through standardized questionnaires, protocols, and log files as well as semistructured qualitative interviews. The outcome measures (neuropsychiatric inventory and Cohen-Mansfield agitation inventory) are analyzed by using descriptive statistics and statistical tests relevant to the individual assessments (eg, chi-square test and Wilcoxon signed-rank test). For the analysis of the process data, the Unified Theory of Acceptance and Use of Technology is used. Log files are analyzed by using descriptive statistics, protocols are analyzed by using documentary analysis, and semistructured interviews are analyzed deductively using content analysis. The newly developed app- and sensor-based AT has been developed and was evaluated until July in 2018. The recruitment of dyads started in September 2017 and was concluded in March 2018. The data collection was completed at the end of July 2018. This study presents the protocol of the first feasibility study to encompass an outcome and process evaluation to assess a complex app- and sensor-based AT combining multimodal actimetry sensors for informal caregivers to manage CB. The feasibility study will provide in-depth information about the study procedure and on how to optimize the design of the intervention and its delivery. DERR1-10.2196/11630}, language = {en} } @article{TeipelHeineHeinetal.2017, author = {Teipel, Stefan and Heine, Christina and Hein, Albert and Kr{\"u}ger, Frank and Kutschke, Andreas and Kernebeck, Sven and Halek, Margareta and Bader, Sebastian and Kirste, Thomas}, title = {Multidimensional assessment of challenging behaviors in advanced stages of dementia in nursing homes—The insideDEM framework}, series = {Alzheimer's \& Dementia: Diagnosis, Assessment \& Disease Monitoring}, volume = {8}, journal = {Alzheimer's \& Dementia: Diagnosis, Assessment \& Disease Monitoring}, issn = {2352-8729}, doi = {10.25974/fhms-17330}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173308}, pages = {36 -- 44}, year = {2017}, abstract = {IntroductionAssessment of challenging behaviors in dementia is important for intervention selection. Here, we describe the technical and experimental setup and the feasibility of long-term multidimensional behavior assessment of people with dementia living in nursing homes.MethodsWe conducted 4 weeks of multimodal sensor assessment together with real-time observation of 17 residents with moderate to very severe dementia in two nursing care units. Nursing staff received extensive training on device handling and measurement procedures. Behavior of a subsample of eight participants was further recorded by videotaping during 4 weeks during day hours. Sensors were mounted on the participants' wrist and ankle and measured motion, rotation, as well as surrounding loudness level, light level, and air pressure.ResultsParticipants were in moderate to severe stages of dementia. Almost 100\% of participants exhibited relevant levels of challenging behaviors. Automated quality control detected 155 potential issues. But only 11\% of the recordings have been influenced by noncompliance of the participants. Qualitative debriefing of staff members suggested that implementation of the technology and observation platform in the routine procedures of the nursing home units was feasible and identified a range of user- and hardware-related implementation and handling challenges.DiscussionOur results indicate that high-quality behavior data from real-world environments can be made available for the development of intelligent assistive systems and that the problem of noncompliance seems to be manageable. Currently, we train machine-learning algorithms to detect episodes of challenging behaviors in the recorded sensor data.}, language = {en} }