@article{AmaefuleGoerssHaleketal.2019, author = {Amaefule, Chimezie O. and Goerss, Doreen and Halek, Margareta and Kernebeck, Sven and Kirste, Thomas and Teipel, Stefan J.}, title = {PREDICTING DAYTIME MANIFESTATIONS OF CHALLENGING BEHAVIOURS IN ADVANCED STAGES OF DEMENTIA USING PRE-DAYTIME ACCELEROMETRY: POST-HOC ANALYSIS OF THE DZNE ROSTOCK INSIDEDEM STUDY}, series = {Alzheimer's \& Dementia}, volume = {15}, journal = {Alzheimer's \& Dementia}, issn = {1552-5260}, doi = {10.1016/j.jalz.2019.06.4063}, pages = {P1451 -- P1452}, year = {2019}, language = {en} } @article{AmaefuleGoerssHaleketal.2019, author = {Amaefule, Chimezie O. and Goerss, Doreen and Halek, Margareta and Kernebeck, Sven and Kirste, Thomas and Teipel, Stefan J.}, title = {PREDICTING DAYTIME MANIFESTATIONS OF CHALLENGING BEHAVIOURS IN ADVANCED STAGES OF DEMENTIA USING PRE-DAYTIME ACCELEROMETRY: POST-HOC ANALYSIS OF THE DZNE ROSTOCK INSIDEDEM STUDY}, series = {Alzheimer's \& Dementia}, volume = {15}, journal = {Alzheimer's \& Dementia}, issn = {1552-5260}, doi = {10.1016/j.jalz.2019.06.4340}, pages = {P165 -- P166}, year = {2019}, language = {en} } @article{KernebeckBusseJuxetal.2021, author = {Kernebeck, Sven and Busse, Theresa Sophie and Jux, Chantal and Meyer, Dorothee and Dreier, Larissa Alice and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians}, series = {Children}, volume = {8}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17321}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173219}, pages = {695}, year = {2021}, abstract = {Background: Electronic medical records (EMRs) offer a promising approach to mapping and documenting the complex information gathered in paediatric palliative care (PPC). However, if they are not well developed, poorly implemented EMRs have unintended consequences that may cause harm to patients. One approach to preventing such harm is the involvement of users in the participatory design to ensure user acceptance and patient safety. Therefore, the aim of this study is to evaluate the acceptance of a novel patient chart module (PCM) as part of an EMR from the perspective of potential users in PPC and to involve these professionals in the design process. Methods: A qualitative observational study with N = 16 PPC professionals (n = 10 nurses, n = 6 physicians) was conducted, including concurrent think aloud (CTA) and semi-structured interviews. A structured content analysis based on the Unified Theory of Acceptance and Use of Technology was applied. Results: The results can be summarized in terms of general observations, performance expectancy, effort expectancy and facilitating conditions, all of which are likely to have a positive influence on acceptance of the PCM from the user perspective in the context of PPC. Conclusions: The involvement of users in the development of EMRs is important for meeting the requirements in PPC. Further software adaptations are necessary to implement these requirements.}, language = {en} } @article{BusseJuxKernebecketal.2021, author = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care: A Think-Aloud Study}, series = {Children}, volume = {8}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17319}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173191}, pages = {839}, year = {2021}, abstract = {Background: Pediatric palliative care (PPC) patients experience years of multisectoral and professional care. An electronic cross-facility health record (ECHR) system can support the immediate exchange of information among PPC professionals. Based on a needs assessment, a prototype ECHR system was developed. Methods: To evaluate potential users' perspective regarding the system, a qualitative observational study was conducted consisting of a concurrent think-aloud session and a semi-structured qualitative interview. Results: Twenty PPC professionals (nurses, physicians) from specialized outpatient PPC teams, a PPC unit, and medical offices rated the ECHR system as a helpful tool to improve the exchange and collection of information, communication between PPC professionals, and treatment planning. From the user's point of view, the basic logic of the ECHR system should be further adapted to improve the interaction of data remirrored from patient records of outpatient and inpatient care with those entered via the system. The users wished for further functions (text search) and content (information on therapies). Some content, such as the treatment process, needs to be further adapted. Conclusion: The developed ECHR system needs to be more specific in some features by offering all available information; while for other features, be less specific to offer a quick overview. The ability to share information promptly and automatically was seen as a tremendous improvement to the quality of care for PPC patients.}, language = {en} } @article{GoerssHeinBaderetal.2019, author = {Goerss, Doreen and Hein, Albert and Bader, Sebastian and Halek, Margareta and Kernebeck, Sven and Kutschke, Andreas and Kirste, Thomas and Teipel, Stefan J.}, title = {P1-284: AUTOMATED SENSOR-BASED DETECTION OF CHALLENGING BEHAVIORS IN ADVANCED STAGES OF DEMENTIA IN NURSING HOMES}, series = {Alzheimer's \& Dementia}, volume = {15}, journal = {Alzheimer's \& Dementia}, number = {7S_Part_7}, issn = {1552-5260}, doi = {10.1016/j.jalz.2019.06.839}, pages = {P351}, year = {2019}, language = {en} } @article{NitscheSmetanaKochaneketal.2021, author = {Nitsche, Julia and Smetana, Jan and Kochanek, Tonja and Busse, Theresa Sophie and Kernebeck, Sven and Taetz-Harrer, Angelika and Zupanic, Michaela and Eulitz, Mona and Ehlers, Jan P.}, title = {Needs must when the devil drives - Migration of an entire university to digital teaching}, series = {Zeitschrift f{\"u}r Hochschulentwicklung}, volume = {16}, journal = {Zeitschrift f{\"u}r Hochschulentwicklung}, number = {3}, doi = {10.25974/fhms-17316}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173168}, year = {2021}, language = {en} } @article{BusseJuxKernebecketal.2021, author = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach}, series = {Children}, volume = {8}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17324}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173245}, pages = {602}, year = {2021}, abstract = {Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. Methods: Guided by design thinking, first, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Based on the needs stated in the interviews, prototypes of the ECHR were developed and discussed in the FGs. The indicated needs were supplemented and specified in an iterative process. The prototypes were further adapted according to these results. The unified theory of acceptance and use of technology was the basic model in the evaluation of needs. Results: Across seven main categories, past and current medication, emergency view, and messaging functions were identified as the participants' desired core components of an ECHR. Utilizing design thinking facilitated the explicit articulation of user needs. Conclusions: Developing an ECHR with the content identified would allow for real-time data during emergencies, tracking what other PPC professionals have done, and making the applied treatments visible to others. This would offer a broader picture of the complex conditions common to PPC.}, language = {en} } @article{TeipelHeineHeinetal.2017, author = {Teipel, Stefan and Heine, Christina and Hein, Albert and Kr{\"u}ger, Frank and Kutschke, Andreas and Kernebeck, Sven and Halek, Margareta and Bader, Sebastian and Kirste, Thomas}, title = {Multidimensional assessment of challenging behaviors in advanced stages of dementia in nursing homes—The insideDEM framework}, series = {Alzheimer's \& Dementia: Diagnosis, Assessment \& Disease Monitoring}, volume = {8}, journal = {Alzheimer's \& Dementia: Diagnosis, Assessment \& Disease Monitoring}, issn = {2352-8729}, doi = {10.25974/fhms-17330}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173308}, pages = {36 -- 44}, year = {2017}, abstract = {IntroductionAssessment of challenging behaviors in dementia is important for intervention selection. Here, we describe the technical and experimental setup and the feasibility of long-term multidimensional behavior assessment of people with dementia living in nursing homes.MethodsWe conducted 4 weeks of multimodal sensor assessment together with real-time observation of 17 residents with moderate to very severe dementia in two nursing care units. Nursing staff received extensive training on device handling and measurement procedures. Behavior of a subsample of eight participants was further recorded by videotaping during 4 weeks during day hours. Sensors were mounted on the participants' wrist and ankle and measured motion, rotation, as well as surrounding loudness level, light level, and air pressure.ResultsParticipants were in moderate to severe stages of dementia. Almost 100\% of participants exhibited relevant levels of challenging behaviors. Automated quality control detected 155 potential issues. But only 11\% of the recordings have been influenced by noncompliance of the participants. Qualitative debriefing of staff members suggested that implementation of the technology and observation platform in the routine procedures of the nursing home units was feasible and identified a range of user- and hardware-related implementation and handling challenges.DiscussionOur results indicate that high-quality behavior data from real-world environments can be made available for the development of intelligent assistive systems and that the problem of noncompliance seems to be manageable. Currently, we train machine-learning algorithms to detect episodes of challenging behaviors in the recorded sensor data.}, language = {en} } @article{KernebeckBusseBoettcheretal.2020, author = {Kernebeck, Sven and Busse, Theresa S and B{\"o}ttcher, Maximilian D and Weitz, J{\"u}rgen and Ehlers, Jan and Bork, Ulrich}, title = {Impact of mobile health and medical applications on clinical practice in gastroenterology}, series = {World Journal of Gastroenterology}, volume = {26}, journal = {World Journal of Gastroenterology}, issn = {1007-9327}, doi = {10.3748/wjg.v26.i29.4182}, pages = {4182 -- 4197}, year = {2020}, abstract = {Mobile health apps (MHAs) and medical apps (MAs) are becoming increasingly popular as digital interventions in a wide range of health-related applications in almost all sectors of healthcare. The surge in demand for digital medical solutions has been accelerated by the need for new diagnostic and therapeutic methods in the current coronavirus disease 2019 pandemic. This also applies to clinical practice in gastroenterology, which has, in many respects, undergone a recent digital transformation with numerous consequences that will impact patients and health care professionals in the near future. MHAs and MAs are considered to have great potential, especially for chronic diseases, as they can support the self-management of patients in many ways. Despite the great potential associated with the application of MHAs and MAs in gastroenterology and health care in general, there are numerous challenges to be met in the future, including both the ethical and legal aspects of applying this technology. The aim of this article is to provide an overview of the current status of MHA and MA use in the field of gastroenterology, describe the future perspectives in this field and point out some of the challenges that need to be addressed.}, language = {en} } @article{KernebeckBusseJuxetal.2021, author = {Kernebeck, Sven and Busse, Theresa Sophie and Jux, Chantal and Bork, Ulrich and Ehlers, Jan P.}, title = {Electronic Medical Records for (Visceral) Medicine: An Overview of the Current Status and Prospects}, series = {Visceral Medicine}, volume = {37}, journal = {Visceral Medicine}, issn = {2297-4725}, doi = {10.1159/000519254}, pages = {476 -- 481}, year = {2021}, abstract = {Background: Electronic medical records (EMRs) offer key advantages over analog documentation in healthcare. In addition to providing details about current and past treatments, EMRs enable clear and traceable documentation regardless of the location. This supports evidence-based, multi-professional treatment and leads to more efficient healthcare. However, there are still several challenges regarding the use of EMRs. Understanding these challenges is essential to improve healthcare. The aim of this article is to provide an overview of the current state of EMRs in the field of visceral medicine, to describe the future prospects in this field, and to highlight some of the challenges that need to be faced. Summary: The benefits of EMRs are manifold and particularly pronounced in the area of quality assurance and improvement of communication not only between different healthcare professionals but also between physicians and patients. Besides the danger of medical errors, the health consequences for the users (cognitive load) arise from poor usability or a system that does not fit into the real world. Involving users in the development of EMRs in the sense of participatory design can be helpful here. The use of EMRs in practice together with patients should be accompanied by training to ensure optimal outcomes in terms of shared decision-making. Key Message: EMRs offer a variety of benefits. However, it is critical to consider user involvement, setting specificity, and user training during development, implementation, and use in order to minimize unintended consequences.}, language = {en} }