@article{MeyerKernebeckBusseetal.2021,
  author    = {Meyer, Dorothee and Kernebeck, Sven and Busse, Theresa Sophie and Ehlers, Jan and Wager, Julia and Zernikow, Boris and Dreier, Larissa Alice},
  title     = {Electronic Health Records in Specialized Pediatric Palliative Care: A Qualitative Needs Assessment among Professionals Experienced and Inexperienced in Electronic Documentation},
  series = {Children},
  volume    = {8},
  journal   = {Children},
  issn      = {2227-9067},
  doi       = {10.25974/fhms-17326},
  url       = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173265},
  pages     = {249},
  year      = {2021},
  abstract  = {Background: Currently, to the best of our knowledge, no findings exist concerning the needs of professionals in specialized pediatric palliative care (PPC) regarding electronic health records (EHRs). Several studies have highlighted benefits concerning the use of EHRs in pediatrics. However, usability is strongly affected by the degree of adaptivity to the context of application. The aim of this study is to examine the needs of professionals concerning an EHR in the specialized PPC inpatient and outpatient settings. Methods: A qualitative research design was chosen to address the complex aspects of user demands. Focus group interviews and semi-structured one-on-one interviews were conducted with PPC professionals. N = 23 participants from inpatient and N = 11 participants from outpatient settings of specialized PPC representing various professions took part in the study. Results: The findings could be grouped into four categories: (1) attitude towards the current methods of documentation, (2) attitude towards electronic documentation in general, (3) general requirements for an EHR, and (4) content requirements for an EHR. Conclusions: Professionals in specialized PPC expect and experience many benefits of using electronic documentation. Their requirements for an EHR for inpatient and outpatient settings of PPC are largely consistent with EHRs for pediatrics. However, individual specifications and adaptations are necessary for this particular setting.},
  language  = {en}
}
@article{KernebeckJuxBusseetal.2022,
  author    = {Kernebeck, Sven and Jux, Chantal and Busse, Theresa Sophie and Meyer, Dorothee and Dreier, Larissa Alice and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians},
  series = {Children},
  volume    = {9},
  journal   = {Children},
  issn      = {2227-9067},
  doi       = {10.25974/fhms-17315},
  url       = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173158},
  pages     = {82},
  year      = {2022},
  abstract  = {Background: Electronic medical records (EMRs) play a key role in improving documentation and quality of care in paediatric palliative care (PPC). Inadequate EMR design can cause incorrect prescription and administration of medications. Due to the fact of complex diseases and the resulting high level of medical complexity, patients in PPC are vulnerable to medication errors. Consequently, involving users in the development process is important. Therefore, the aim of this study was to evaluate the acceptance of a medication module from the perspective of potential users in PPC and to involve them in the development process. Methods: A qualitative observational study was conducted with 10 nurses and four physicians using a concurrent think-aloud protocol and semi-structured qualitative interviews. A qualitative content analysis was applied based on a unified theory of acceptance and use of technology. Results: Requirements from the user's perspective could be identified as possible influences on acceptance and actual use. Requirements were grouped into the categories "performance expectancies" and "effort expectancies". Conclusions: The results serve as a basis for further development. Attention should be given to the reduction of display fragmentation, as it decreases cognitive load. Further approaches to evaluation should be taken.},
  language  = {de}
}
@article{KernebeckJuxBusseetal.2022,
  author    = {Kernebeck, Sven and Jux, Chantal and Busse, Theresa Sophie and Meyer, Dorothee and Dreier, Larissa Alice and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians},
  series = {Children},
  volume    = {9},
  journal   = {Children},
  issn      = {2227-9067},
  doi       = {10.25974/fhms-17314},
  url       = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173146},
  pages     = {82},
  year      = {2022},
  abstract  = {Background: Electronic medical records (EMRs) play a key role in improving documentation and quality of care in paediatric palliative care (PPC). Inadequate EMR design can cause incorrect prescription and administration of medications. Due to the fact of complex diseases and the resulting high level of medical complexity, patients in PPC are vulnerable to medication errors. Consequently, involving users in the development process is important. Therefore, the aim of this study was to evaluate the acceptance of a medication module from the perspective of potential users in PPC and to involve them in the development process. Methods: A qualitative observational study was conducted with 10 nurses and four physicians using a concurrent think-aloud protocol and semi-structured qualitative interviews. A qualitative content analysis was applied based on a unified theory of acceptance and use of technology. Results: Requirements from the user's perspective could be identified as possible influences on acceptance and actual use. Requirements were grouped into the categories "performance expectancies" and "effort expectancies". Conclusions: The results serve as a basis for further development. Attention should be given to the reduction of display fragmentation, as it decreases cognitive load. Further approaches to evaluation should be taken.},
  language  = {de}
}
@inproceedings{KernebeckBusseMeyeretal.2020,
  author    = {Kernebeck, Sven and Busse, Theresa Sophie and Meyer, Dorothee and Dreier, Larissa and Wager, Julia and Zernikow, Boris and Ehlers, Jen Peter},
  title     = {User-Centered Design und User Co-Design aus Perspektive der Versorgungsforschung - Methodische Herausforderungen bei der Evaluation von Nutzer*innenbed{\"u}rfnissen an eine Elektronische Patient*innenakte in der station{\"a}ren p{\"a}diartrischen Palliativversorgung},
  series = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, 30.09. - 01.10.2020, digital},
  booktitle = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, 30.09. - 01.10.2020, digital},
  doi       = {10.3205/20dkvf351},
  year      = {2020},
  language  = {de}
}
@article{KernebeckBusseJuxetal.2021,
  author    = {Kernebeck, Sven and Busse, Theresa Sophie and Jux, Chantal and Meyer, Dorothee and Dreier, Larissa Alice and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians},
  series = {Children},
  volume    = {8},
  journal   = {Children},
  issn      = {2227-9067},
  doi       = {10.25974/fhms-17321},
  url       = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173219},
  pages     = {695},
  year      = {2021},
  abstract  = {Background: Electronic medical records (EMRs) offer a promising approach to mapping and documenting the complex information gathered in paediatric palliative care (PPC). However, if they are not well developed, poorly implemented EMRs have unintended consequences that may cause harm to patients. One approach to preventing such harm is the involvement of users in the participatory design to ensure user acceptance and patient safety. Therefore, the aim of this study is to evaluate the acceptance of a novel patient chart module (PCM) as part of an EMR from the perspective of potential users in PPC and to involve these professionals in the design process. Methods: A qualitative observational study with N = 16 PPC professionals (n = 10 nurses, n = 6 physicians) was conducted, including concurrent think aloud (CTA) and semi-structured interviews. A structured content analysis based on the Unified Theory of Acceptance and Use of Technology was applied. Results: The results can be summarized in terms of general observations, performance expectancy, effort expectancy and facilitating conditions, all of which are likely to have a positive influence on acceptance of the PCM from the user perspective in the context of PPC. Conclusions: The involvement of users in the development of EMRs is important for meeting the requirements in PPC. Further software adaptations are necessary to implement these requirements.},
  language  = {en}
}
@article{KernebeckBusseJuxetal.2022,
  author    = {Kernebeck, Sven and Busse, Theresa Sophie and Jux, Chantal and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Evaluation of an Electronic Medical Record Module for Nursing Documentation in Paediatric Palliative Care: Involvement of Nurses with a Think-Aloud Approach},
  series = {International Journal of Environmental Research and Public Health},
  volume    = {19},
  journal   = {International Journal of Environmental Research and Public Health},
  issn      = {1661-7827},
  doi       = {10.25974/fhms-17313},
  url       = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173137},
  pages     = {3637},
  year      = {2022},
  abstract  = {Background: Paediatric palliative care (PPC) is a noncurative approach to the care of children and adolescents with life-limiting and life-threatening illnesses. Electronic medical records (EMRs) play an important role in documenting such complex processes. Despite their benefits, they can introduce unintended consequences if future users are not involved in their development. Aim: The aim of this study was to evaluate the acceptance of a novel module for nursing documentation by nurses working in the context of PPC. Methods: An observational study employing concurrent think-aloud and semi-structured qualitative interviews were conducted with 11 nurses working in PPC. Based on the main determinants of the unified theory of acceptance and use of technology (UTAUT), data were analysed using qualitative content analysis. Results: The main determinants of UTAUT were found to potentially influence acceptance of the novel module. Participants perceived the module to be self-explanatory and intuitive. Some adaptations, such as the reduction of fragmentation in the display, the optimization of confusing mouseover fields, and the use of familiar nursing terminology, are reasonable ways of increasing software adoption. Conclusions: After adaptation of the modules based on the results, further evaluation with the participation of future users is required.},
  language  = {de}
}
@inproceedings{JuxBusseKernebecketal.2021,
  author    = {Jux, Chantal and Busse, Theresa Sophie and Kernebeck, Sven and Dreier, L.A. and Meyer, Dorothee and Zenz, Daniel and Wager, Julia and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Nutzung von User-Stories zur partizipativen Entwicklung einer elektronischen Patient*innenakte (EPA) f{\"u}r die spezialisierte ambulante p{\"a}diatrische Palliativversorgung (SAPPV) - ein Erfahrungsbericht aus Perspektive der Versorgungsforschung},
  series = {20. Deutscher Kongress f{\"u}r Versorgungsforschung, 08.10.2021, digital},
  booktitle = {20. Deutscher Kongress f{\"u}r Versorgungsforschung, 08.10.2021, digital},
  doi       = {10.3205/21dkvf254},
  year      = {2021},
  language  = {de}
}
@inproceedings{BusseKernebeckMeyeretal.2020,
  author    = {Busse, Theresa Sophie and Kernebeck, Sven and Meyer, Dorothee and Dreier, Larissa and Goletz, Grazyna and Zenz, Daniel and Ehlers, Jan Peter and Wager, Julia and Zernikow, Boris},
  title     = {Verbesserung der Gesundheitsversorgung in der p{\"a}diatrischen Palliativversorgung durch Digitalisierung im partizipativen Entwicklungs- und Forschungsprojekt ELSA-PP zur Entwicklung eines elektronischen sektoren{\"u}bergreifenden Aktensystems},
  series = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, 30.09. - 01.10.2020, digital},
  booktitle = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, 30.09. - 01.10.2020, digital},
  doi       = {10.3205/20dkvf435},
  year      = {2020},
  language  = {de}
}
@article{BusseKernebeckDreieretal.2020,
  author    = {Busse, Theresa Sophie and Kernebeck, Sven and Dreier, Larissa and Meyer, Dorothee and Goletz, Graznya and Zenz, D. and Wager, Julia and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Nutzung von Mock-ups im Co-Design-Prozess der partizipativen Entwicklung einer station{\"a}ren elektronischen Patient*innenakte f{\"u}r die p{\"a}diatrische Palliativversorgung - ein Erfahrungsbericht},
  series = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, Deutsches Netzwerk f{\"u}r Versorgungsforschung e.V, September 2020, online},
  journal   = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, Deutsches Netzwerk f{\"u}r Versorgungsforschung e.V, September 2020, online},
  doi       = {10.3205/20dkvf117},
  year      = {2020},
  language  = {de}
}
@article{BusseKernebeckDreieretal.2020,
  author    = {Busse, Theresa Sophie and Kernebeck, Sven and Dreier, Larissa Alicia and Meyer, Dorothee and Goletz, Grazyna and Zenz, Daniel and Zernikow, Boris and Wager, Julia},
  title     = {Nutzer*innenzentrierte Entwicklung einer digitalen Patient*innenakte in der p{\"a}diatrischen Palliativversorgung.},
  year      = {2020},
  language  = {de}
}