@article{JuxTiesmeyerKnecht2021,
  author    = {Jux, Chantal and Tiesmeyer, Karin and Knecht, Christiane},
  title     = {Perinataler Verlust eines Kindes - die Perspektive der V{\"a}ter},
  series = {Die Hebamme},
  volume    = {34},
  journal   = {Die Hebamme},
  number    = {5},
  doi       = {10.1055/a-1551-2737},
  pages     = {22 -- 29},
  year      = {2021},
  language  = {de}
}
@inproceedings{BusseJuxKernebecketal.2021,
  author    = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Meyer, Dorothee and Dreier, Larissa and Zenz, Daniel and Wager, Julia and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {"Manchmal gehen die Faxger{\"a}te gerade nicht so wie sie sollen. Dann kommt irgendwie nichts an und dann ruft man das f{\"u}nfte Mal an." - Nutzung von Design Thinking zur partizipativen Entwicklung einer elektronischen Fallakte in der p{\"a}diatrischen Palliativversorgung},
  series = {20. Deutscher Kongress f{\"u}r Versorgungsforschung, 06. - 08.10.2021, digital},
  booktitle = {20. Deutscher Kongress f{\"u}r Versorgungsforschung, 06. - 08.10.2021, digital},
  doi       = {10.3205/21dkvf220},
  year      = {2021},
  language  = {de}
}
@inproceedings{JuxBusseKernebecketal.2021,
  author    = {Jux, Chantal and Busse, Theresa Sophie and Kernebeck, Sven and Dreier, L.A. and Meyer, Dorothee and Zenz, Daniel and Wager, Julia and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Nutzung von User-Stories zur partizipativen Entwicklung einer elektronischen Patient*innenakte (EPA) f{\"u}r die spezialisierte ambulante p{\"a}diatrische Palliativversorgung (SAPPV) - ein Erfahrungsbericht aus Perspektive der Versorgungsforschung},
  series = {20. Deutscher Kongress f{\"u}r Versorgungsforschung, 08.10.2021, digital},
  booktitle = {20. Deutscher Kongress f{\"u}r Versorgungsforschung, 08.10.2021, digital},
  doi       = {10.3205/21dkvf254},
  year      = {2021},
  language  = {de}
}
@article{BusseJuxKernebecketal.2021,
  author    = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Meister, Sven and Ehlers, Jan P.},
  title     = {Steigerung der Versorgungsqualit{\"a}t in der Palliativversorgung durch elektronische Gesundheitsakten},
  series = {Monitor Versorgungsforschung},
  volume    = {14},
  journal   = {Monitor Versorgungsforschung},
  issn      = {1866-0533},
  doi       = {10.25974/fhms-17303},
  url       = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173035},
  pages     = {45 -- 50},
  year      = {2021},
  language  = {de}
}
@article{BusseJuxKernebecketal.2021,
  author    = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care: A Think-Aloud Study},
  series = {Children},
  volume    = {8},
  journal   = {Children},
  issn      = {2227-9067},
  doi       = {10.25974/fhms-17319},
  url       = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173191},
  pages     = {839},
  year      = {2021},
  abstract  = {Background: Pediatric palliative care (PPC) patients experience years of multisectoral and professional care. An electronic cross-facility health record (ECHR) system can support the immediate exchange of information among PPC professionals. Based on a needs assessment, a prototype ECHR system was developed. Methods: To evaluate potential users' perspective regarding the system, a qualitative observational study was conducted consisting of a concurrent think-aloud session and a semi-structured qualitative interview. Results: Twenty PPC professionals (nurses, physicians) from specialized outpatient PPC teams, a PPC unit, and medical offices rated the ECHR system as a helpful tool to improve the exchange and collection of information, communication between PPC professionals, and treatment planning. From the user's point of view, the basic logic of the ECHR system should be further adapted to improve the interaction of data remirrored from patient records of outpatient and inpatient care with those entered via the system. The users wished for further functions (text search) and content (information on therapies). Some content, such as the treatment process, needs to be further adapted. Conclusion: The developed ECHR system needs to be more specific in some features by offering all available information; while for other features, be less specific to offer a quick overview. The ability to share information promptly and automatically was seen as a tremendous improvement to the quality of care for PPC patients.},
  language  = {en}
}
@article{KernebeckBusseJuxetal.2021,
  author    = {Kernebeck, Sven and Busse, Theresa Sophie and Jux, Chantal and Bork, Ulrich and Ehlers, Jan P.},
  title     = {Electronic Medical Records for (Visceral) Medicine: An Overview of the Current Status and Prospects},
  series = {Visceral Medicine},
  volume    = {37},
  journal   = {Visceral Medicine},
  issn      = {2297-4725},
  doi       = {10.1159/000519254},
  pages     = {476 -- 481},
  year      = {2021},
  abstract  = {Background: Electronic medical records (EMRs) offer key advantages over analog documentation in healthcare. In addition to providing details about current and past treatments, EMRs enable clear and traceable documentation regardless of the location. This supports evidence-based, multi-professional treatment and leads to more efficient healthcare. However, there are still several challenges regarding the use of EMRs. Understanding these challenges is essential to improve healthcare. The aim of this article is to provide an overview of the current state of EMRs in the field of visceral medicine, to describe the future prospects in this field, and to highlight some of the challenges that need to be faced. Summary: The benefits of EMRs are manifold and particularly pronounced in the area of quality assurance and improvement of communication not only between different healthcare professionals but also between physicians and patients. Besides the danger of medical errors, the health consequences for the users (cognitive load) arise from poor usability or a system that does not fit into the real world. Involving users in the development of EMRs in the sense of participatory design can be helpful here. The use of EMRs in practice together with patients should be accompanied by training to ensure optimal outcomes in terms of shared decision-making. Key Message: EMRs offer a variety of benefits. However, it is critical to consider user involvement, setting specificity, and user training during development, implementation, and use in order to minimize unintended consequences.},
  language  = {en}
}
@article{KernebeckBusseJuxetal.2021,
  author    = {Kernebeck, Sven and Busse, Theresa Sophie and Jux, Chantal and Meyer, Dorothee and Dreier, Larissa Alice and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians},
  series = {Children},
  volume    = {8},
  journal   = {Children},
  issn      = {2227-9067},
  doi       = {10.25974/fhms-17321},
  url       = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173219},
  pages     = {695},
  year      = {2021},
  abstract  = {Background: Electronic medical records (EMRs) offer a promising approach to mapping and documenting the complex information gathered in paediatric palliative care (PPC). However, if they are not well developed, poorly implemented EMRs have unintended consequences that may cause harm to patients. One approach to preventing such harm is the involvement of users in the participatory design to ensure user acceptance and patient safety. Therefore, the aim of this study is to evaluate the acceptance of a novel patient chart module (PCM) as part of an EMR from the perspective of potential users in PPC and to involve these professionals in the design process. Methods: A qualitative observational study with N = 16 PPC professionals (n = 10 nurses, n = 6 physicians) was conducted, including concurrent think aloud (CTA) and semi-structured interviews. A structured content analysis based on the Unified Theory of Acceptance and Use of Technology was applied. Results: The results can be summarized in terms of general observations, performance expectancy, effort expectancy and facilitating conditions, all of which are likely to have a positive influence on acceptance of the PCM from the user perspective in the context of PPC. Conclusions: The involvement of users in the development of EMRs is important for meeting the requirements in PPC. Further software adaptations are necessary to implement these requirements.},
  language  = {en}
}
@article{BusseJuxKernebecketal.2021,
  author    = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach},
  series = {Children},
  volume    = {8},
  journal   = {Children},
  issn      = {2227-9067},
  doi       = {10.25974/fhms-17324},
  url       = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173245},
  pages     = {602},
  year      = {2021},
  abstract  = {Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. Methods: Guided by design thinking, first, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Based on the needs stated in the interviews, prototypes of the ECHR were developed and discussed in the FGs. The indicated needs were supplemented and specified in an iterative process. The prototypes were further adapted according to these results. The unified theory of acceptance and use of technology was the basic model in the evaluation of needs. Results: Across seven main categories, past and current medication, emergency view, and messaging functions were identified as the participants' desired core components of an ECHR. Utilizing design thinking facilitated the explicit articulation of user needs. Conclusions: Developing an ECHR with the content identified would allow for real-time data during emergencies, tracking what other PPC professionals have done, and making the applied treatments visible to others. This would offer a broader picture of the complex conditions common to PPC.},
  language  = {en}
}