@article{KernebeckBusseJuxetal.2021,
  author    = {Kernebeck, Sven and Busse, Theresa Sophie and Jux, Chantal and Meyer, Dorothee and Dreier, Larissa Alice and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians},
  series = {Children},
  volume    = {8},
  journal   = {Children},
  issn      = {2227-9067},
  doi       = {10.25974/fhms-17321},
  url       = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173219},
  pages     = {695},
  year      = {2021},
  abstract  = {Background: Electronic medical records (EMRs) offer a promising approach to mapping and documenting the complex information gathered in paediatric palliative care (PPC). However, if they are not well developed, poorly implemented EMRs have unintended consequences that may cause harm to patients. One approach to preventing such harm is the involvement of users in the participatory design to ensure user acceptance and patient safety. Therefore, the aim of this study is to evaluate the acceptance of a novel patient chart module (PCM) as part of an EMR from the perspective of potential users in PPC and to involve these professionals in the design process. Methods: A qualitative observational study with N = 16 PPC professionals (n = 10 nurses, n = 6 physicians) was conducted, including concurrent think aloud (CTA) and semi-structured interviews. A structured content analysis based on the Unified Theory of Acceptance and Use of Technology was applied. Results: The results can be summarized in terms of general observations, performance expectancy, effort expectancy and facilitating conditions, all of which are likely to have a positive influence on acceptance of the PCM from the user perspective in the context of PPC. Conclusions: The involvement of users in the development of EMRs is important for meeting the requirements in PPC. Further software adaptations are necessary to implement these requirements.},
  language  = {en}
}
@article{BusseJuxKernebecketal.2021,
  author    = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach},
  series = {Children},
  volume    = {8},
  journal   = {Children},
  issn      = {2227-9067},
  doi       = {10.25974/fhms-17324},
  url       = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173245},
  pages     = {602},
  year      = {2021},
  abstract  = {Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. Methods: Guided by design thinking, first, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Based on the needs stated in the interviews, prototypes of the ECHR were developed and discussed in the FGs. The indicated needs were supplemented and specified in an iterative process. The prototypes were further adapted according to these results. The unified theory of acceptance and use of technology was the basic model in the evaluation of needs. Results: Across seven main categories, past and current medication, emergency view, and messaging functions were identified as the participants' desired core components of an ECHR. Utilizing design thinking facilitated the explicit articulation of user needs. Conclusions: Developing an ECHR with the content identified would allow for real-time data during emergencies, tracking what other PPC professionals have done, and making the applied treatments visible to others. This would offer a broader picture of the complex conditions common to PPC.},
  language  = {en}
}
@article{MeyerKernebeckBusseetal.2021,
  author    = {Meyer, Dorothee and Kernebeck, Sven and Busse, Theresa Sophie and Ehlers, Jan and Wager, Julia and Zernikow, Boris and Dreier, Larissa Alice},
  title     = {Electronic Health Records in Specialized Pediatric Palliative Care: A Qualitative Needs Assessment among Professionals Experienced and Inexperienced in Electronic Documentation},
  series = {Children},
  volume    = {8},
  journal   = {Children},
  issn      = {2227-9067},
  doi       = {10.25974/fhms-17326},
  url       = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173265},
  pages     = {249},
  year      = {2021},
  abstract  = {Background: Currently, to the best of our knowledge, no findings exist concerning the needs of professionals in specialized pediatric palliative care (PPC) regarding electronic health records (EHRs). Several studies have highlighted benefits concerning the use of EHRs in pediatrics. However, usability is strongly affected by the degree of adaptivity to the context of application. The aim of this study is to examine the needs of professionals concerning an EHR in the specialized PPC inpatient and outpatient settings. Methods: A qualitative research design was chosen to address the complex aspects of user demands. Focus group interviews and semi-structured one-on-one interviews were conducted with PPC professionals. N = 23 participants from inpatient and N = 11 participants from outpatient settings of specialized PPC representing various professions took part in the study. Results: The findings could be grouped into four categories: (1) attitude towards the current methods of documentation, (2) attitude towards electronic documentation in general, (3) general requirements for an EHR, and (4) content requirements for an EHR. Conclusions: Professionals in specialized PPC expect and experience many benefits of using electronic documentation. Their requirements for an EHR for inpatient and outpatient settings of PPC are largely consistent with EHRs for pediatrics. However, individual specifications and adaptations are necessary for this particular setting.},
  language  = {en}
}
@inproceedings{BusseKernebeckNefetal.2020,
  author    = {Busse, Theresa Sophie and Kernebeck, Sven and Nef, Larissa and Kickbusch, Ilona and Ehlers, Jan P.},
  title     = {Talk to me - Soziale Roboter im Gesundheitswesen.},
  series = {Report Careum Dialog 2020},
  booktitle = {Report Careum Dialog 2020},
  year      = {2020},
  language  = {de}
}
@inproceedings{KernebeckBusseKrameretal.2020,
  author    = {Kernebeck, Sven and Busse, Theresa Sophie and Kramer, Ursula and Redaelli, Marcus and Ehlers, Jan Peter and Vollmar, Horst Christian},
  title     = {Pandemie-Management und Digital Health - Merkmale und Qualit{\"a}t von Smartphone-Apps im Kontext der COVID-19 Pandemie},
  series = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, September 2020, online},
  booktitle = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, September 2020, online},
  doi       = {10.3205/20dkvf036},
  year      = {2020},
  language  = {de}
}
@article{BusseKernebeckDreieretal.2020,
  author    = {Busse, Theresa Sophie and Kernebeck, Sven and Dreier, Larissa and Meyer, Dorothee and Goletz, Graznya and Zenz, D. and Wager, Julia and Zernikow, Boris and Ehlers, Jan Peter},
  title     = {Nutzung von Mock-ups im Co-Design-Prozess der partizipativen Entwicklung einer station{\"a}ren elektronischen Patient*innenakte f{\"u}r die p{\"a}diatrische Palliativversorgung - ein Erfahrungsbericht},
  series = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, Deutsches Netzwerk f{\"u}r Versorgungsforschung e.V, September 2020, online},
  journal   = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, Deutsches Netzwerk f{\"u}r Versorgungsforschung e.V, September 2020, online},
  doi       = {10.3205/20dkvf117},
  year      = {2020},
  language  = {de}
}
@inproceedings{KernebeckBusseMeyeretal.2020,
  author    = {Kernebeck, Sven and Busse, Theresa Sophie and Meyer, Dorothee and Dreier, Larissa and Wager, Julia and Zernikow, Boris and Ehlers, Jen Peter},
  title     = {User-Centered Design und User Co-Design aus Perspektive der Versorgungsforschung - Methodische Herausforderungen bei der Evaluation von Nutzer*innenbed{\"u}rfnissen an eine Elektronische Patient*innenakte in der station{\"a}ren p{\"a}diartrischen Palliativversorgung},
  series = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, 30.09. - 01.10.2020, digital},
  booktitle = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, 30.09. - 01.10.2020, digital},
  doi       = {10.3205/20dkvf351},
  year      = {2020},
  language  = {de}
}
@inproceedings{BusseKernebeckMeyeretal.2020,
  author    = {Busse, Theresa Sophie and Kernebeck, Sven and Meyer, Dorothee and Dreier, Larissa and Goletz, Grazyna and Zenz, Daniel and Ehlers, Jan Peter and Wager, Julia and Zernikow, Boris},
  title     = {Verbesserung der Gesundheitsversorgung in der p{\"a}diatrischen Palliativversorgung durch Digitalisierung im partizipativen Entwicklungs- und Forschungsprojekt ELSA-PP zur Entwicklung eines elektronischen sektoren{\"u}bergreifenden Aktensystems},
  series = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, 30.09. - 01.10.2020, digital},
  booktitle = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, 30.09. - 01.10.2020, digital},
  doi       = {10.3205/20dkvf435},
  year      = {2020},
  language  = {de}
}
@article{BusseKernebeckDreieretal.2020,
  author    = {Busse, Theresa Sophie and Kernebeck, Sven and Dreier, Larissa Alicia and Meyer, Dorothee and Goletz, Grazyna and Zenz, Daniel and Zernikow, Boris and Wager, Julia},
  title     = {Nutzer*innenzentrierte Entwicklung einer digitalen Patient*innenakte in der p{\"a}diatrischen Palliativversorgung.},
  year      = {2020},
  language  = {de}
}
@article{BusseKernebeckDreieretal.2020,
  author    = {Busse, Theresa Sophie and Kernebeck, Sven and Dreier, Larissa Alicia and Meyer, Dorothee and Goletz, Grazyna and Zenz, Daniel and Wager, Julia and Ehlers, Jan Peter and Zernikow, Boris},
  title     = {Nutzer*innenzentrierte Entwicklung einer elektronischen Patient*innenakte f{\"u}r die p{\"a}diatrische Palliativversorgung - Ergebnisse von Fokusgruppeninterviews mit Pflegenden im station{\"a}ren Setting.},
  series = {Zeitschrift f{\"u}r Palliativmedizin},
  volume    = {21},
  journal   = {Zeitschrift f{\"u}r Palliativmedizin},
  number    = {5},
  doi       = {10.1055/s-0040-1714990},
  year      = {2020},
  language  = {de}
}