@article{AmaefuleGoerssHaleketal.2019, author = {Amaefule, Chimezie O. and Goerss, Doreen and Halek, Margareta and Kernebeck, Sven and Kirste, Thomas and Teipel, Stefan J.}, title = {PREDICTING DAYTIME MANIFESTATIONS OF CHALLENGING BEHAVIOURS IN ADVANCED STAGES OF DEMENTIA USING PRE-DAYTIME ACCELEROMETRY: POST-HOC ANALYSIS OF THE DZNE ROSTOCK INSIDEDEM STUDY}, series = {Alzheimer's \& Dementia}, volume = {15}, journal = {Alzheimer's \& Dementia}, issn = {1552-5260}, doi = {10.1016/j.jalz.2019.06.4063}, pages = {P1451 -- P1452}, year = {2019}, language = {en} } @article{AmaefuleGoerssHaleketal.2019, author = {Amaefule, Chimezie O. and Goerss, Doreen and Halek, Margareta and Kernebeck, Sven and Kirste, Thomas and Teipel, Stefan J.}, title = {PREDICTING DAYTIME MANIFESTATIONS OF CHALLENGING BEHAVIOURS IN ADVANCED STAGES OF DEMENTIA USING PRE-DAYTIME ACCELEROMETRY: POST-HOC ANALYSIS OF THE DZNE ROSTOCK INSIDEDEM STUDY}, series = {Alzheimer's \& Dementia}, volume = {15}, journal = {Alzheimer's \& Dementia}, issn = {1552-5260}, doi = {10.1016/j.jalz.2019.06.4340}, pages = {P165 -- P166}, year = {2019}, language = {en} } @article{BusseJuxKernebecketal.2021, author = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care: A Think-Aloud Study}, series = {Children}, volume = {8}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17319}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173191}, pages = {839}, year = {2021}, abstract = {Background: Pediatric palliative care (PPC) patients experience years of multisectoral and professional care. An electronic cross-facility health record (ECHR) system can support the immediate exchange of information among PPC professionals. Based on a needs assessment, a prototype ECHR system was developed. Methods: To evaluate potential users' perspective regarding the system, a qualitative observational study was conducted consisting of a concurrent think-aloud session and a semi-structured qualitative interview. Results: Twenty PPC professionals (nurses, physicians) from specialized outpatient PPC teams, a PPC unit, and medical offices rated the ECHR system as a helpful tool to improve the exchange and collection of information, communication between PPC professionals, and treatment planning. From the user's point of view, the basic logic of the ECHR system should be further adapted to improve the interaction of data remirrored from patient records of outpatient and inpatient care with those entered via the system. The users wished for further functions (text search) and content (information on therapies). Some content, such as the treatment process, needs to be further adapted. Conclusion: The developed ECHR system needs to be more specific in some features by offering all available information; while for other features, be less specific to offer a quick overview. The ability to share information promptly and automatically was seen as a tremendous improvement to the quality of care for PPC patients.}, language = {en} } @article{BusseJuxKernebecketal.2021, author = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach}, series = {Children}, volume = {8}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17324}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173245}, pages = {602}, year = {2021}, abstract = {Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. Methods: Guided by design thinking, first, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Based on the needs stated in the interviews, prototypes of the ECHR were developed and discussed in the FGs. The indicated needs were supplemented and specified in an iterative process. The prototypes were further adapted according to these results. The unified theory of acceptance and use of technology was the basic model in the evaluation of needs. Results: Across seven main categories, past and current medication, emergency view, and messaging functions were identified as the participants' desired core components of an ECHR. Utilizing design thinking facilitated the explicit articulation of user needs. Conclusions: Developing an ECHR with the content identified would allow for real-time data during emergencies, tracking what other PPC professionals have done, and making the applied treatments visible to others. This would offer a broader picture of the complex conditions common to PPC.}, language = {en} } @article{BusseJuxKernebecketal.2021, author = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Meister, Sven and Ehlers, Jan P.}, title = {Steigerung der Versorgungsqualit{\"a}t in der Palliativversorgung durch elektronische Gesundheitsakten}, series = {Monitor Versorgungsforschung}, volume = {14}, journal = {Monitor Versorgungsforschung}, issn = {1866-0533}, doi = {10.25974/fhms-17303}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173035}, pages = {45 -- 50}, year = {2021}, language = {de} } @article{BusseJuxLaseretal.2023, author = {Busse, Theresa Sophie and Jux, Chantal and Laser, Johannes and Rasche, Peter and Vollmar, Horst Christian and Ehlers, Jan P and Kernebeck, Sven}, title = {Involving Health Care Professionals in the Development of Electronic Health Records: Scoping Review}, series = {JMIR Human Factors}, volume = {10}, journal = {JMIR Human Factors}, doi = {10.25974/fhms-17305}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173050}, pages = {e45598}, year = {2023}, abstract = {Electronic health records (EHRs) are a promising approach to document and map (complex) health information gathered in health care worldwide. However, possible unintended consequences during use, which can occur owing to low usability or the lack of adaption to existing workflows (eg, high cognitive load), may pose a challenge. To prevent this, the involvement of users in the development of EHRs is crucial and growing. Overall, involvement is designed to be very multifaceted, for example, in terms of the timing, frequency, or even methods used to capture user preferences. Setting, users and their needs, and the context and practice of health care must be considered in the design and subsequent implementation of EHRs. Many different approaches to user involvement exist, each requiring a variety of methodological choices. The aim of the study was to provide an overview of the existing forms of user involvement and the circumstances they need and to provide support for the planning of new involvement processes. We conducted a scoping review to provide a database for future projects on which design of inclusion is worthwhile and to show the diversity of reporting. Using a very broad search string, we searched the PubMed, CINAHL, and Scopus databases. In addition, we searched Google Scholar. Hits were screened according to scoping review methodology and then examined, focusing on methods and materials, participants, frequency and design of the development, and competencies of the researchers involved. In total, 70 articles were included in the final analysis. There was a wide range of methods of involvement. Physicians and nurses were the most frequently included groups and, in most cases, were involved only once in the process. The approach of involvement (eg, co-design) was not specified in most of the studies (44/70, 63\%). Further qualitative deficiencies in the reporting were evident in the presentation of the competences of members of the research and development teams. Think-aloud sessions, interviews, and prototypes were frequently used. This review provides insights into the diversity of health care professionals' involvement in the development of EHRs. It provides an overview of the different approaches in various fields of health care. However, it also shows the necessity of considering quality standards in the development of EHRs together with future users and the need for reporting this in future studies.}, language = {de} } @article{BusseKernebeckDreieretal.2020, author = {Busse, Theresa Sophie and Kernebeck, Sven and Dreier, Larissa Alicia and Meyer, Dorothee and Goletz, Grazyna and Zenz, Daniel and Wager, Julia and Ehlers, Jan Peter and Zernikow, Boris}, title = {Nutzer*innenzentrierte Entwicklung einer elektronischen Patient*innenakte f{\"u}r die p{\"a}diatrische Palliativversorgung - Ergebnisse von Fokusgruppeninterviews mit Pflegenden im station{\"a}ren Setting.}, series = {Zeitschrift f{\"u}r Palliativmedizin}, volume = {21}, journal = {Zeitschrift f{\"u}r Palliativmedizin}, number = {5}, doi = {10.1055/s-0040-1714990}, year = {2020}, language = {de} } @article{BusseKernebeckDreieretal.2020, author = {Busse, Theresa Sophie and Kernebeck, Sven and Dreier, Larissa Alicia and Meyer, Dorothee and Goletz, Grazyna and Zenz, Daniel and Zernikow, Boris and Wager, Julia}, title = {Nutzer*innenzentrierte Entwicklung einer digitalen Patient*innenakte in der p{\"a}diatrischen Palliativversorgung.}, year = {2020}, language = {de} } @article{BusseKernebeckDreieretal.2020, author = {Busse, Theresa Sophie and Kernebeck, Sven and Dreier, Larissa and Meyer, Dorothee and Goletz, Graznya and Zenz, D. and Wager, Julia and Zernikow, Boris and Ehlers, Jan Peter}, title = {Nutzung von Mock-ups im Co-Design-Prozess der partizipativen Entwicklung einer station{\"a}ren elektronischen Patient*innenakte f{\"u}r die p{\"a}diatrische Palliativversorgung - ein Erfahrungsbericht}, series = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, Deutsches Netzwerk f{\"u}r Versorgungsforschung e.V, September 2020, online}, journal = {19. Deutscher Kongress f{\"u}r Versorgungsforschung, Deutsches Netzwerk f{\"u}r Versorgungsforschung e.V, September 2020, online}, doi = {10.3205/20dkvf117}, year = {2020}, language = {de} } @article{BusseKernebeckNefetal.2021, author = {Busse, Theresa Sophie and Kernebeck, Sven and Nef, Larissa and Rebacz, Patrick and Kickbusch, Ilona and Ehlers, Jan Peter}, title = {Views on Using Social Robots in Professional Caregiving: Content Analysis of a Scenario Method Workshop (Preprint)}, series = {J Med Internet Res}, volume = {23}, journal = {J Med Internet Res}, number = {11}, doi = {10.25974/fhms-17307}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173072}, year = {2021}, abstract = {BACKGROUND Interest in digital technologies in the health care sector is growing and can be a way to reduce the burden on professional caregivers while helping people to become more independent. Social robots are regarded as a special form of technology that can be usefully applied in professional caregiving with the potential to focus on interpersonal contact. While implementation is progressing slowly, a debate on the concepts and applications of social robots in future care is necessary. OBJECTIVE In addition to existing studies with a focus on societal attitudes toward social robots, there is a need to understand the views of professional caregivers and patients. This study used desired future scenarios to collate the perspectives of experts and analyze the significance for developing the place of social robots in care. METHODS In February 2020, an expert workshop was held with 88 participants (health professionals and educators; [PhD] students of medicine, health care, professional care, and technology; patient advocates; software developers; government representatives; and research fellows) from Austria, Germany, and Switzerland. Using the scenario methodology, the possibilities of analog professional care (Analog Care), fully robotic professional care (Robotic Care), teams of robots and professional caregivers (Deep Care), and professional caregivers supported by robots (Smart Care) were discussed. The scenarios were used as a stimulus for the development of ideas about future professional caregiving. The discussion was evaluated using qualitative content analysis. RESULTS The majority of the experts were in favor of care in which people are supported by technology (Deep Care) and developed similar scenarios with a focus on dignity-centeredness. The discussions then focused on the steps necessary for its implementation, highlighting a strong need for the development of eHealth competence in society, a change in the training of professional caregivers, and cross-sectoral concepts. The experts also saw user acceptance as crucial to the use of robotics. This involves the acceptance of both professional caregivers and care recipients. CONCLUSIONS The literature review and subsequent workshop revealed how decision-making about the value of social robots depends on personal characteristics related to experience and values. There is therefore a strong need to recognize individual perspectives of care before social robots become an integrated part of care in the future.}, language = {de} }