@misc{JuxLorenzHoelzgenetal.2019, author = {Jux, Chantal and Lorenz, Anna and H{\"o}lzgen, Tina and Tiesmeyer, Karin and Knecht, Christiane}, title = {Familien an der Grenze des Lebens - Herausforderungen einer angemessenen pflegerischen Begleitung und Unterst{\"u}tzung. (Symposium) 10. DGP Hochschultag, Deutsche Gesellschaft f{\"u}r Pflegewissenschaft e.V., Fachhochschule M{\"u}nster, 08.11.2019.}, year = {2019}, language = {de} } @article{JuxTiesmeyerKnecht2021, author = {Jux, Chantal and Tiesmeyer, Karin and Knecht, Christiane}, title = {Perinataler Verlust eines Kindes - die Perspektive der V{\"a}ter}, series = {Die Hebamme}, volume = {34}, journal = {Die Hebamme}, number = {5}, doi = {10.1055/a-1551-2737}, pages = {22 -- 29}, year = {2021}, language = {de} } @inproceedings{BusseKernebeckJuxetal.2022, author = {Busse, Theresa Sophie and Kernebeck, Sven and Jux, Chantal and Laser, Johannes and Ehlers, Jan Peter}, title = {Einbezug von Versorger:innen in die Entwicklung und Evaluation elektronischer Gesundheitsakten - ein Scoping Review}, series = {21. Deutscher Kongress f{\"u}r Versorgungsforschung, Deutsches Netzwerk Versorgungsforschung e. V., 05.10. - 07.10.2022, Potsdam}, booktitle = {21. Deutscher Kongress f{\"u}r Versorgungsforschung, Deutsches Netzwerk Versorgungsforschung e. V., 05.10. - 07.10.2022, Potsdam}, doi = {10.3205/22dkvf342}, year = {2022}, language = {de} } @inproceedings{BusseJuxKernebecketal.2021, author = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Meyer, Dorothee and Dreier, Larissa and Zenz, Daniel and Wager, Julia and Zernikow, Boris and Ehlers, Jan Peter}, title = {"Manchmal gehen die Faxger{\"a}te gerade nicht so wie sie sollen. Dann kommt irgendwie nichts an und dann ruft man das f{\"u}nfte Mal an." - Nutzung von Design Thinking zur partizipativen Entwicklung einer elektronischen Fallakte in der p{\"a}diatrischen Palliativversorgung}, series = {20. Deutscher Kongress f{\"u}r Versorgungsforschung, 06. - 08.10.2021, digital}, booktitle = {20. Deutscher Kongress f{\"u}r Versorgungsforschung, 06. - 08.10.2021, digital}, doi = {10.3205/21dkvf220}, year = {2021}, language = {de} } @inproceedings{JuxBusseKernebecketal.2021, author = {Jux, Chantal and Busse, Theresa Sophie and Kernebeck, Sven and Dreier, L.A. and Meyer, Dorothee and Zenz, Daniel and Wager, Julia and Zernikow, Boris and Ehlers, Jan Peter}, title = {Nutzung von User-Stories zur partizipativen Entwicklung einer elektronischen Patient*innenakte (EPA) f{\"u}r die spezialisierte ambulante p{\"a}diatrische Palliativversorgung (SAPPV) - ein Erfahrungsbericht aus Perspektive der Versorgungsforschung}, series = {20. Deutscher Kongress f{\"u}r Versorgungsforschung, 08.10.2021, digital}, booktitle = {20. Deutscher Kongress f{\"u}r Versorgungsforschung, 08.10.2021, digital}, doi = {10.3205/21dkvf254}, year = {2021}, language = {de} } @article{BusseJuxKernebecketal.2021, author = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Meister, Sven and Ehlers, Jan P.}, title = {Steigerung der Versorgungsqualit{\"a}t in der Palliativversorgung durch elektronische Gesundheitsakten}, series = {Monitor Versorgungsforschung}, volume = {14}, journal = {Monitor Versorgungsforschung}, issn = {1866-0533}, doi = {10.25974/fhms-17303}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173035}, pages = {45 -- 50}, year = {2021}, language = {de} } @article{BusseJuxLaseretal.2023, author = {Busse, Theresa Sophie and Jux, Chantal and Laser, Johannes and Rasche, Peter and Vollmar, Horst Christian and Ehlers, Jan P and Kernebeck, Sven}, title = {Involving Health Care Professionals in the Development of Electronic Health Records: Scoping Review}, series = {JMIR Human Factors}, volume = {10}, journal = {JMIR Human Factors}, doi = {10.25974/fhms-17305}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173050}, pages = {e45598}, year = {2023}, abstract = {Electronic health records (EHRs) are a promising approach to document and map (complex) health information gathered in health care worldwide. However, possible unintended consequences during use, which can occur owing to low usability or the lack of adaption to existing workflows (eg, high cognitive load), may pose a challenge. To prevent this, the involvement of users in the development of EHRs is crucial and growing. Overall, involvement is designed to be very multifaceted, for example, in terms of the timing, frequency, or even methods used to capture user preferences. Setting, users and their needs, and the context and practice of health care must be considered in the design and subsequent implementation of EHRs. Many different approaches to user involvement exist, each requiring a variety of methodological choices. The aim of the study was to provide an overview of the existing forms of user involvement and the circumstances they need and to provide support for the planning of new involvement processes. We conducted a scoping review to provide a database for future projects on which design of inclusion is worthwhile and to show the diversity of reporting. Using a very broad search string, we searched the PubMed, CINAHL, and Scopus databases. In addition, we searched Google Scholar. Hits were screened according to scoping review methodology and then examined, focusing on methods and materials, participants, frequency and design of the development, and competencies of the researchers involved. In total, 70 articles were included in the final analysis. There was a wide range of methods of involvement. Physicians and nurses were the most frequently included groups and, in most cases, were involved only once in the process. The approach of involvement (eg, co-design) was not specified in most of the studies (44/70, 63\%). Further qualitative deficiencies in the reporting were evident in the presentation of the competences of members of the research and development teams. Think-aloud sessions, interviews, and prototypes were frequently used. This review provides insights into the diversity of health care professionals' involvement in the development of EHRs. It provides an overview of the different approaches in various fields of health care. However, it also shows the necessity of considering quality standards in the development of EHRs together with future users and the need for reporting this in future studies.}, language = {de} } @article{BusseNitscheKernebecketal.2022, author = {Busse, Theresa Sophie and Nitsche, Julia and Kernebeck, Sven and Jux, Chantal and Weitz, J{\"u}rgen and Ehlers, Jan P. and Bork, Ulrich}, title = {Approaches to Improvement of Digital Health Literacy (eHL) in the Context of Person-Centered Care}, series = {International Journal of Environmental Research and Public Health}, volume = {19}, journal = {International Journal of Environmental Research and Public Health}, issn = {1661-7827}, doi = {10.25974/fhms-17311}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173115}, pages = {8309}, year = {2022}, abstract = {The skills, knowledge and resources to search for, find, understand, evaluate and apply health information is defined as health literacy (HL). If individuals want to use health information from the Internet, they need Digital Health Literacy (eHL), which in addition to HL also includes, for example, media literacy. If information cannot be found or understood by patients due to low (e)HL, patients will not have the opportunity to make informed decisions. In addition, many health apps for self-management or prevention also require (e)HL. Thus, it follows that active participation in healthcare, in terms of Person-Centered Care (PCC) is only possible through (e)HL. Currently, there is a great need to strengthen these competencies in society to achieve increased empowerment of patients and their health. However, at the same time, there is a need to train and improve competencies in the field of healthcare professionals so that they can counsel and guide patients. This article provides an overview with a focus on HL and eHL in healthcare, shows the opportunities to adapt services and describes the possible handling of patients with low (e)HL. In addition, the opportunities for patients and healthcare professionals to improve (e)HL are highlighted.}, language = {de} } @article{KernebeckBusseJuxetal.2022, author = {Kernebeck, Sven and Busse, Theresa Sophie and Jux, Chantal and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Evaluation of an Electronic Medical Record Module for Nursing Documentation in Paediatric Palliative Care: Involvement of Nurses with a Think-Aloud Approach}, series = {International Journal of Environmental Research and Public Health}, volume = {19}, journal = {International Journal of Environmental Research and Public Health}, issn = {1661-7827}, doi = {10.25974/fhms-17313}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173137}, pages = {3637}, year = {2022}, abstract = {Background: Paediatric palliative care (PPC) is a noncurative approach to the care of children and adolescents with life-limiting and life-threatening illnesses. Electronic medical records (EMRs) play an important role in documenting such complex processes. Despite their benefits, they can introduce unintended consequences if future users are not involved in their development. Aim: The aim of this study was to evaluate the acceptance of a novel module for nursing documentation by nurses working in the context of PPC. Methods: An observational study employing concurrent think-aloud and semi-structured qualitative interviews were conducted with 11 nurses working in PPC. Based on the main determinants of the unified theory of acceptance and use of technology (UTAUT), data were analysed using qualitative content analysis. Results: The main determinants of UTAUT were found to potentially influence acceptance of the novel module. Participants perceived the module to be self-explanatory and intuitive. Some adaptations, such as the reduction of fragmentation in the display, the optimization of confusing mouseover fields, and the use of familiar nursing terminology, are reasonable ways of increasing software adoption. Conclusions: After adaptation of the modules based on the results, further evaluation with the participation of future users is required.}, language = {de} } @article{KernebeckJuxBusseetal.2022, author = {Kernebeck, Sven and Jux, Chantal and Busse, Theresa Sophie and Meyer, Dorothee and Dreier, Larissa Alice and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians}, series = {Children}, volume = {9}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17314}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173146}, pages = {82}, year = {2022}, abstract = {Background: Electronic medical records (EMRs) play a key role in improving documentation and quality of care in paediatric palliative care (PPC). Inadequate EMR design can cause incorrect prescription and administration of medications. Due to the fact of complex diseases and the resulting high level of medical complexity, patients in PPC are vulnerable to medication errors. Consequently, involving users in the development process is important. Therefore, the aim of this study was to evaluate the acceptance of a medication module from the perspective of potential users in PPC and to involve them in the development process. Methods: A qualitative observational study was conducted with 10 nurses and four physicians using a concurrent think-aloud protocol and semi-structured qualitative interviews. A qualitative content analysis was applied based on a unified theory of acceptance and use of technology. Results: Requirements from the user's perspective could be identified as possible influences on acceptance and actual use. Requirements were grouped into the categories "performance expectancies" and "effort expectancies". Conclusions: The results serve as a basis for further development. Attention should be given to the reduction of display fragmentation, as it decreases cognitive load. Further approaches to evaluation should be taken.}, language = {de} } @article{KernebeckJuxBusseetal.2022, author = {Kernebeck, Sven and Jux, Chantal and Busse, Theresa Sophie and Meyer, Dorothee and Dreier, Larissa Alice and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians}, series = {Children}, volume = {9}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17315}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173158}, pages = {82}, year = {2022}, abstract = {Background: Electronic medical records (EMRs) play a key role in improving documentation and quality of care in paediatric palliative care (PPC). Inadequate EMR design can cause incorrect prescription and administration of medications. Due to the fact of complex diseases and the resulting high level of medical complexity, patients in PPC are vulnerable to medication errors. Consequently, involving users in the development process is important. Therefore, the aim of this study was to evaluate the acceptance of a medication module from the perspective of potential users in PPC and to involve them in the development process. Methods: A qualitative observational study was conducted with 10 nurses and four physicians using a concurrent think-aloud protocol and semi-structured qualitative interviews. A qualitative content analysis was applied based on a unified theory of acceptance and use of technology. Results: Requirements from the user's perspective could be identified as possible influences on acceptance and actual use. Requirements were grouped into the categories "performance expectancies" and "effort expectancies". Conclusions: The results serve as a basis for further development. Attention should be given to the reduction of display fragmentation, as it decreases cognitive load. Further approaches to evaluation should be taken.}, language = {de} } @article{BusseJuxKernebecketal.2021, author = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care: A Think-Aloud Study}, series = {Children}, volume = {8}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17319}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173191}, pages = {839}, year = {2021}, abstract = {Background: Pediatric palliative care (PPC) patients experience years of multisectoral and professional care. An electronic cross-facility health record (ECHR) system can support the immediate exchange of information among PPC professionals. Based on a needs assessment, a prototype ECHR system was developed. Methods: To evaluate potential users' perspective regarding the system, a qualitative observational study was conducted consisting of a concurrent think-aloud session and a semi-structured qualitative interview. Results: Twenty PPC professionals (nurses, physicians) from specialized outpatient PPC teams, a PPC unit, and medical offices rated the ECHR system as a helpful tool to improve the exchange and collection of information, communication between PPC professionals, and treatment planning. From the user's point of view, the basic logic of the ECHR system should be further adapted to improve the interaction of data remirrored from patient records of outpatient and inpatient care with those entered via the system. The users wished for further functions (text search) and content (information on therapies). Some content, such as the treatment process, needs to be further adapted. Conclusion: The developed ECHR system needs to be more specific in some features by offering all available information; while for other features, be less specific to offer a quick overview. The ability to share information promptly and automatically was seen as a tremendous improvement to the quality of care for PPC patients.}, language = {en} } @article{KernebeckBusseJuxetal.2021, author = {Kernebeck, Sven and Busse, Theresa Sophie and Jux, Chantal and Bork, Ulrich and Ehlers, Jan P.}, title = {Electronic Medical Records for (Visceral) Medicine: An Overview of the Current Status and Prospects}, series = {Visceral Medicine}, volume = {37}, journal = {Visceral Medicine}, issn = {2297-4725}, doi = {10.1159/000519254}, pages = {476 -- 481}, year = {2021}, abstract = {Background: Electronic medical records (EMRs) offer key advantages over analog documentation in healthcare. In addition to providing details about current and past treatments, EMRs enable clear and traceable documentation regardless of the location. This supports evidence-based, multi-professional treatment and leads to more efficient healthcare. However, there are still several challenges regarding the use of EMRs. Understanding these challenges is essential to improve healthcare. The aim of this article is to provide an overview of the current state of EMRs in the field of visceral medicine, to describe the future prospects in this field, and to highlight some of the challenges that need to be faced. Summary: The benefits of EMRs are manifold and particularly pronounced in the area of quality assurance and improvement of communication not only between different healthcare professionals but also between physicians and patients. Besides the danger of medical errors, the health consequences for the users (cognitive load) arise from poor usability or a system that does not fit into the real world. Involving users in the development of EMRs in the sense of participatory design can be helpful here. The use of EMRs in practice together with patients should be accompanied by training to ensure optimal outcomes in terms of shared decision-making. Key Message: EMRs offer a variety of benefits. However, it is critical to consider user involvement, setting specificity, and user training during development, implementation, and use in order to minimize unintended consequences.}, language = {en} } @article{KernebeckBusseJuxetal.2021, author = {Kernebeck, Sven and Busse, Theresa Sophie and Jux, Chantal and Meyer, Dorothee and Dreier, Larissa Alice and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians}, series = {Children}, volume = {8}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17321}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173219}, pages = {695}, year = {2021}, abstract = {Background: Electronic medical records (EMRs) offer a promising approach to mapping and documenting the complex information gathered in paediatric palliative care (PPC). However, if they are not well developed, poorly implemented EMRs have unintended consequences that may cause harm to patients. One approach to preventing such harm is the involvement of users in the participatory design to ensure user acceptance and patient safety. Therefore, the aim of this study is to evaluate the acceptance of a novel patient chart module (PCM) as part of an EMR from the perspective of potential users in PPC and to involve these professionals in the design process. Methods: A qualitative observational study with N = 16 PPC professionals (n = 10 nurses, n = 6 physicians) was conducted, including concurrent think aloud (CTA) and semi-structured interviews. A structured content analysis based on the Unified Theory of Acceptance and Use of Technology was applied. Results: The results can be summarized in terms of general observations, performance expectancy, effort expectancy and facilitating conditions, all of which are likely to have a positive influence on acceptance of the PCM from the user perspective in the context of PPC. Conclusions: The involvement of users in the development of EMRs is important for meeting the requirements in PPC. Further software adaptations are necessary to implement these requirements.}, language = {en} } @article{BusseJuxKernebecketal.2021, author = {Busse, Theresa Sophie and Jux, Chantal and Kernebeck, Sven and Dreier, Larissa Alice and Meyer, Dorothee and Zenz, Daniel and Zernikow, Boris and Ehlers, Jan Peter}, title = {Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach}, series = {Children}, volume = {8}, journal = {Children}, issn = {2227-9067}, doi = {10.25974/fhms-17324}, url = {http://nbn-resolving.de/urn:nbn:de:hbz:836-opus-173245}, pages = {602}, year = {2021}, abstract = {Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. Methods: Guided by design thinking, first, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Based on the needs stated in the interviews, prototypes of the ECHR were developed and discussed in the FGs. The indicated needs were supplemented and specified in an iterative process. The prototypes were further adapted according to these results. The unified theory of acceptance and use of technology was the basic model in the evaluation of needs. Results: Across seven main categories, past and current medication, emergency view, and messaging functions were identified as the participants' desired core components of an ECHR. Utilizing design thinking facilitated the explicit articulation of user needs. Conclusions: Developing an ECHR with the content identified would allow for real-time data during emergencies, tracking what other PPC professionals have done, and making the applied treatments visible to others. This would offer a broader picture of the complex conditions common to PPC.}, language = {en} }